Abandoned by our insurance company, we have found comfort in your support and love. An appeal has been submitted to GHI/Blue Cross, Blue Shield in the hopes that they will reconsider their decision.
As we await an answer, we are desperately seeking help in facilitating a favorable outcome.
I ask you for your help, without shame, for my daughter Julia. Please share her story with everyone you know, like her page, like her posts, and comment. Most of all, pray for us, pray for Julia.
Thank you and God bless and protect you all!
With all our love,
The Bruzzese family.
After being denied treatment for a third time, Julia handed me this letter and asked if I could mail it for her.
Dear Governor Cuomo,
My name is Julia Bruzzese. I am 12 years old. I go to St. Bernadette School in Brooklyn NY. I am currently in a wheelchair and cannot walk or feel my legs. I have been sick since last May. I was recently blessed by the pope, and was all over the news! Before I got sick I was very active in my school community. I participated in many activities and clubs I was also the second vice president elect of my school. I was a straight A student and have a lot of friends. In May something tragic happened. I got very sick. I visited the emergency room six times and I was in four different hospitals. I have visited numerous specialists and after three months and many negative test results I got a clinical diagnosis of Lyme disease that triggered GBS and POTS. I had to start taking pills every half an hour. I was very depressed and was giving up on myself. Some doctors told me it was all in my head. I was giving up on hope and especially prayer. I spent my whole summer in hospitals. My two older brothers, James and Adam and my little six year old sister, Sofia gave up there summer and spent every single day in the hospital with me. My siblings and I are very close and I love them more than anything. My dad had to leave his work to take care of me and he lost his salary. After three months of being sick I realized there is still hope and that I shouldn’t bury myself in self-pity. Instead of being mad at God I began to pray to him.
After getting oral antibiotics for Lyme disease, I started to feel my toes and wiggle my toes. I started to become more awake when before I couldn’t stay awake for more than five minutes. I started to feel better but I still couldn’t feel the rest of my legs and still couldn’t walk. When September came I wasn’t able to go back to school because I couldn’t focus on my school work and because my school is not wheelchair accessible. My friends and Principle have been by my side every step of the way. My principle Sr. Joan, gave me and my family tickets to see the pope at JFK airport. I wasn’t expecting the pope to come over to me to bless me, but he did! Meeting the pope was the most precious moment of my life. I believe that he will give me a miracle to walk again. After meeting the pope I was interviewed by many reporters.
An Albany, NY doctor saw me on TV and offered his help for free. My family and I took him up on his offer. He would administer IV antibiotics for Lyme disease. I now have been living in upstate, NY with my father away from my siblings and my mother and my best friends who I love so much. Now we are trying to get a PICC line and medicine delivered to my home so that I can reunite with my family and friends. Because my dad is not working, we cannot afford this. We are in danger of losing our home, where I grew up. The insurance company is denying paying for my treatment. I know that I am only 12, but I believe that this experience has matured me and made me stronger than ever. I promise myself that when I walk I will make a difference. I promise myself I will visit the sick. NO child or adult should go through what I’ve been through. The country that I live in, the country that I love, please stand up for me to get better. I do not get sleep over just thinking of not walking again. I have to stay strong for my parents, my siblings, my friends, and my school. So to whoever is reading this, speaking from the bottom of my heart, please help me! I promise in a wheelchair or not, I will try to the best of my ability to make a difference! To Governor Cuomo, I hope you read this message and I am asking you to please help me!
God bless and protect you all!