collecte section Bourgogne

https://www.helloasso.com/associations/association-france-lyme/collectes/section-bourgogne

...Dutch Lyme patient Jeroen Link (27)jumped off a cliff .... According to his mother he didn't want more life from the effects of Lyme disease, under which he suffered for a dozen years.


...Dutch Lyme patient Jeroen Link (27)jumped off a cliff .... According to his mother he didn't want more life from the effects of Lyme disease, under which he suffered for a dozen years.




 . Young man jumped of a cliff...English translation

"The tragic death of a Lyme patient He traveled from his home in Lelystad by train to Etretat in Normandy ( France ) and jump off a cliff . According to his mother he did not want to live with the consequences of Lyme disease , which he was burdened for twelve years . Jeroen Link Lelystad was 27 years. Elly Muurlink ( 58 ) has the necessary experienced in her life , but the fate of her eldest son Jeroen is superlative . She is at peace with his self-chosen death . Understands that he did not want to continue , but finds that his death may not have been in vain. She wants the Netherlands to open eyes . " There should be more understanding and attention arise for patients suffering from this terrible disease . Do not drop . Do not rob them hope , "is her insistent call. Therefore, she tells the story about her son Jeroen . Here and there proudly , sometimes interrupted by tears , with a variety of anger and dismay . Her mother's heart is broken, but her fighting spirit not . Jeroen is the oldest of two children . Born in Amsterdam . For children, the family moved to Lelystad . Jeroen is a troublemaker . Always in motion. ADHD. A chunk of energy . Lelystad he yielded all the space . To play football. Space that has become probably him too. Fatal Somewhere in the polder wilderness he is bitten by a tick that causes him Lyme disease . When and how is unclear. That he gets around his fifteenth health . He is often tired . After investigation it appears Pfeiffer to have the members. One time, he can not go to school . The recovery takes a long time . Every time he does something . Swollen glands . Fever. Wound Rose. Doctors could not find anything . He also gets terribly bothered by sweating . It is so bad that he will be operated to get rid of his . 'He had almost with toilet rolls under his armpits to keep walking ,'' says his mother dry . Years later finds an internist at the hospital in Lelystad the wells . He recommends a test for Lyme disease . The result is clear. No man overboard . Antibiotics and suffering would be finally ago. But the symptoms remain . It is actually getting worse . Jeroen knows his training by trial and error to complete hotel management but once working in a restaurant , he has to call in sick more often . It's just not . Dizziness . Moe. Excruciating pain in joints and muscles . Discouraged, he is from . He goes from doctor to doctor . Roams the Internet looking for help . Sees many hospitals in the country from within . Endlessly tested but not better . Then falls on a day the word refractory . His mother abhors there from . "He is refractory . Because chronic Lyme know them in the Netherlands . " If regular care raises hands to heaven , Kate gets the alternative circuit . He allows himself to treat thousands of dollars in a private clinic in Amsterdam. For a year he goes twice a week to go for a cure . No insurance covers the cost . His parents are there willing to pay . Anything to help . Jeroen But it does not help. Moe. Vertigo . Sensitive to light and sound. Pain in joints. He can less and less . And that's nothing for a guy like Jeroen . Who wants to move . Running . Football with his mates , he has done a high level. Eventually he finds new hope at a clinic in Augsburg, Germany , where she with a new program to help Lyme patients medically and psychologically. Cost 20,000 euros . But again, no insurance that covers it. And his parents could not afford it. It must then be tweaked by Jeroen something. His physical condition is getting worse and hope dissipates . If he can not do any sports, it's over. Day in and day out lie on the couch . Too tired and sick to do anything. At the same time angry at the world . On Facebook is to follow . His fight In late November , a month before his death , he wrote : " I am no longer capable of the most simple situations into perspective . This manifests itself in anger , fear, and what hurts most is that I have the people in my area do more hurt than intended. I myself not even understand what is going on . Let alone the people who are close to you . It seems that because the recurring pain always trigger an anxiety trigger , so I again and again fall back into the same pattern destructrieve life . " Jeroen order tanks with helium to deliver . Herself a quiet death His mother knows how to talk . 's Out of his head A second attempt is unexpected . He swallowed a large amount of drugs and painkillers with alcohol , but survives . He then gets the pills in stock . Need them every day but pick . The walk would be good for him . His mother sees him deteriorate from a spirited guy in a wreck . Her eyes dart fire as she repeats the words of doctors . It'll sit between the ears . " Nobody goes anyway for fun every day lying on the couch . Certainly not someone like Kate, with all his energy . He was a bouncing ball . How doctors can say , it 's in your head . " Friends remain loyal to him . Find him . Hours playing computer games with him , although that is really nothing for him . When his mother tells Jeroen in December that he is going to make an end to it that its not unexpected . " We talked , hugged, cried . What could I do ? I was numb . Ideally I wanted to keep him with me of course , but I also gave him peace and quiet . No more pain . I understood his despair . This was no life . It had become really unbearable . Would it be selfish if I stopped it ? " A dilemma . Jeroen gives his mother a necklace with lucky stone and walk out the door . His mother does not know where. The next day they should declare missing to the police . But Jeroen has taken seriously , turns out . For the train jumping is not an option . His father , who works at NS , he knows the stories of train drivers and Hoofdconucteurs . He consciously chooses a place where he has no one to bother . Away from home . It soon becomes apparent Jeroen sit . Etretat He calls himself . Says he has explored the area but find it hard to do it. Following a request from the Dutch police officers searching for him in French Hotel Des Falaises . " But what could they do ? What could I do ? Child not do it, I said . Come home . But he could not . It was much as I jumped with him . To participate fears. But I have a child that is still sick , too. " Yet On 13 December Jeroen puts an end to his life. He jumps in La Poterie - Cap - d'Antifer a cliff and found the next day . In his hotel room is a farewell letter with a personal word to all those who are dear to him . After just a few days his body back in Lelystad . He will lie in state in the house of his mother. "I have so long could hug him every day. " Cremation in Amersfoort in small circles . Every year more than a million people walking on a tick bite . Family physician almost 100,000 in their practice because they are afraid of Lyme . 20,000 suffer and some are seriously ill . Elly Muurlink wants her story stand for Lyme patients . " Why do so difficult about experimental treatments ? What does it matter that it costs $ 20,000 ? Give hell hope. That could have saved him. Take the disease seriously. That 's what I want to say to the political, industrial and medical specialists . It really needs a lot more attention to come . And Cooperation in Europe . " Ellly is not religious but does believe that Jeroen is still somewhere. " He's with me . " She leaves a bag full of drugs and painkillers see that he left behind. And photos of Jeroen , in Australia with a friend . The last big trip . His story ends in Normandy . The statement of the gendarmerie on a simple A4 sheet underscores this bitter fact . Elly shows loving the card that visitors of cremation have been with. With a pen is written : If sorrow and tears could build a stairway and memories a bridge , we climbed high and brought you back...." 

Read the shocking story of Jeroen in the Stentor, 25 January 2014;http://www.tekenbeetziekten.nl/de-dramatische-dood-van-een-lyme-patient/