collecte section Bourgogne

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Promising progress report from Australian Lyme advocates


Promising progress report from Australian Lyme advocates 
Lyme patient’s voices heard at highest level. The Lyme Disease Association of Australia held its inaugural meeting for the peak national body’s newly established 'Lyme Patient Consultative Group' on January 23rd. The purpose of the group is to act as a formal mechanism to acquire and compile evidence, opinions and comments from patients in a collaborative and inclusive way. The group have agreed to meet regularly with the intention of improving conditions on all levels for Lyme patients, their carers and families throughout Australia. The first meeting was a great success and included representatives from 10 national patient groups; and included a briefing and Q&A with Dr Gary Lum from the Department of Health regarding the processes of the Clinical Advisory Committee on Lyme Disease. “Dr Lum’s attendance was a welcomed part of the first meeting as it gave him an opportunity to hear patient concerns directly, and for many representatives to hear directly from a senior government official.” CACLD patient rep, Nikki Coleman said. Following the briefing from Dr Lum, the next priority was to ensure that the wider patient communities knew of and were connected to the various initiatives available to them to give feedback and submissions to the Clinical Advisory Committee on Lyme Disease Scoping Study currently available for comment (http://www.health.gov.au/internet/main/publishing.nsf/Content/ohp-lyme-disease.htm). "Our intention is for the group to act as a united voice for all Lyme disease patients, their carers and families in Australia going forward." says President, Sharon Whiteman. A full media kit is available, and a copy of the inaugural meeting minutes will be available soon from the Lyme Disease Association of Australia's website www.lymedisease.org.au.
Lyme patient’s voices heard at highest level. The Lyme Disease Association of Australia held its inaugural meeting for the peak national body’s newly established 'Lyme Patient Consultative Group' on January 23rd. The purpose of the group is to act as a formal mechanism to acquire and compile evidence, opinions and comments from patients in a collaborative and inclusive way. The group have agreed to meet regularly with the intention of improving conditions on all levels for Lyme patients, their carers and families throughout Australia. The first meeting was a great success and included representatives from 10 national patient groups; and included a briefing and Q&A with Dr Gary Lum from the Department of Health regarding the processes of the Clinical Advisory Committee on Lyme Disease. “Dr Lum’s attendance was a welcomed part of the first meeting as it gave him an opportunity to hear patient concerns directly, and for many representatives to hear directly from a senior government official.” CACLD patient rep, Nikki Coleman said. Following the briefing from Dr Lum, the next priority was to ensure that the wider patient communities knew of and were connected to the various initiatives available to them to give feedback and submissions to the Clinical Advisory Committee on Lyme Disease Scoping Study currently available for comment (http://www.health.gov.au/internet/main/publishing.nsf/Content/ohp-lyme-disease.htm). "Our intention is for the group to act as a united voice for all Lyme disease patients, their carers and families in Australia going forward." says President, Sharon Whiteman. A full media kit is available, and a copy of the inaugural meeting minutes will be available soon from the Lyme Disease Association of Australia's website www.lymedisease.org.au.