Belgian minister's brother forces debate about Lyme disease in parliament:
Marc Crombez , the brother of State Fraud John Crombez ( SP.A ) , attends a hearing today about Lyme disease in the Chamber . Which he enforced , because he almost died after he was wrongly diagnosed with CFS . Together with his brother
Marc ( 36 ) began his 14 from suddenly going backwards , he said in an interview with De Morgen . At first he could not be more clear thinking, " I could not even read a A4 sheet more ' , later also weakened physically , " In 2006 , I lost my bed anymore . "
Several doctors suggested the diagnosis of CFS . Nothing seemed to stop. Decline Marc It came so far that a doctor suggested euthanasia . Marc refused , " even though I could not move . Even my sleeping body stopped working , I sometimes slept only 15 minutes a day . "
John tells how heavy it was. "Day and night he was in a dark room with sunglasses on . I came every day along , but because he was so weak I could only stay for five minutes . "
After the family was contacted two years ago by a doctor in Brussels , a new blood test used , called Elispot assay was still diagnosed with chronic Lyme ' asked. "And I 'm not the only one. Many of my fellow patients were found to have in reality . " Lyme
" Most infectious after HIV '
Today, Marc can again do the everyday things : drive , do errands , make visits . "But some parts of my body will be permanently damaged . That's why I want to help fellow sufferers , so they get the right diagnosis sooner . "
John marc and the like to bring to the attention of Lyme disease . They also want more research coming to CVS, and that the Elispot assay Marc has saved you input in Belgium . "Many CFS patients will test positive for the Elispot assay. In the U.S. and Germany , the test is recognized, but in our country . "
"I hope we do in parliament a longing is made and that a resolution is adopted for the elections," concludes John .
What is CFS and Lyme ?
Chronic fatigue syndrome ( CFS ) causes extreme exhaustion and physical pain . But the disease remains largely unexplained and misunderstood . The diagnosis of CFS is occurring only in many other diseases , such as severe depression , are excluded.
A chronic form of Lyme disease , an infectious disease that can be contracted through a tick bite and possibly blood transfusions , similar symptoms as CFS . Include fatigue , muscle pain , poor recovery , and concentration problems . Many patients , such as Marc , thereby erroneously receive a CVS - diagnosis , so that the Lyme disease is left untreated .
Marc ( 36 ) began his 14 from suddenly going backwards , he said in an interview with De Morgen . At first he could not be more clear thinking, " I could not even read a A4 sheet more ' , later also weakened physically , " In 2006 , I lost my bed anymore . "
Several doctors suggested the diagnosis of CFS . Nothing seemed to stop. Decline Marc It came so far that a doctor suggested euthanasia . Marc refused , " even though I could not move . Even my sleeping body stopped working , I sometimes slept only 15 minutes a day . "
John tells how heavy it was. "Day and night he was in a dark room with sunglasses on . I came every day along , but because he was so weak I could only stay for five minutes . "
After the family was contacted two years ago by a doctor in Brussels , a new blood test used , called Elispot assay was still diagnosed with chronic Lyme ' asked. "And I 'm not the only one. Many of my fellow patients were found to have in reality . " Lyme
" Most infectious after HIV '
Today, Marc can again do the everyday things : drive , do errands , make visits . "But some parts of my body will be permanently damaged . That's why I want to help fellow sufferers , so they get the right diagnosis sooner . "
John marc and the like to bring to the attention of Lyme disease . They also want more research coming to CVS, and that the Elispot assay Marc has saved you input in Belgium . "Many CFS patients will test positive for the Elispot assay. In the U.S. and Germany , the test is recognized, but in our country . "
"I hope we do in parliament a longing is made and that a resolution is adopted for the elections," concludes John .
What is CFS and Lyme ?
Chronic fatigue syndrome ( CFS ) causes extreme exhaustion and physical pain . But the disease remains largely unexplained and misunderstood . The diagnosis of CFS is occurring only in many other diseases , such as severe depression , are excluded.
A chronic form of Lyme disease , an infectious disease that can be contracted through a tick bite and possibly blood transfusions , similar symptoms as CFS . Include fatigue , muscle pain , poor recovery , and concentration problems . Many patients , such as Marc , thereby erroneously receive a CVS - diagnosis , so that the Lyme disease is left untreated .
