'When patients ask me if I am a Lyme Literate Medical Doctor my answer is: "Are you a Lyme literate patient? this is what is important." Unfortunately there is no official certification for a specialty which is not officially acknowledged to exist. The term LLMD has no real meaning. Anyone can use it. Patients have to be their own advocates and know as much about the disease as possible. Learning about the disease is daunting under the best of circumstances and impossible for most patients suffering with"Lyme brains." Nonetheless, keep plugging away. Hopefully a friend, family member or spouse can be helpful'