collecte section Bourgogne

https://www.helloasso.com/associations/association-france-lyme/collectes/section-bourgogne

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Jenna Luche-Thayer


FRIENDS, PLEASE READ & SHARE, I met this impressive young woman, Emilie Burel in London last November. I have every confidence her heart is in the right place and she will produce an excellent documentary.
But don’t take my word for this, read about Emilie below and consider supporting her efforts, or SHARE this message with people you know who have the extra money $$ to support this project!
Bio: Emilie is a 30 years old self-taught filmmaker.
First, she began her studies in archaeology but her health condition did not allow her to continue the physical work of the excavations.
Five years after the onset of her symptoms, she was diagnosed with Lyme disease and she discovered the French and worldwide controversy related to it.
She wanted to participate in research on ticks born disease, which is stammering in France, and obtained a Master 2 research degree in Genetics and Physiology.
Then, she decided to benefit from the possibility given to enter the Medical school. In her application, she explained how working on tick-borne diseases could be important in the areas she wanted to settle and described some lines of research, all supported by the scientific literature.
However, her eligibility was denied and after a deep disappointment, she decided to raise awareness about the scientific reality of Lyme disease and wider the tick- borne diseases. It was therefore crucial for her, to address in particular the medical and scientific community, through a documentary for TV and cinema thanks to screening/ debates especially.
Presentation / aim of the film :
«Did you say Lyme?» is a documentary project that focuses on the persistent conflict situation about Lyme disease within the medical community, in France and abroad.
It has as ambition to become a mediation tool, to facilitate access to a quality information and to help restoring a dialogue in the interest of patients.
While the European Parliament (Nov. 2018) raised a public health problem that the Research had to invest quickly, a part of the French medical community was alerting at the same time about the drifts that she was watching and was criticizing the publication of the new ICD borreliosis codes (WHO, Jun. 2018 ).
If the scientific reasons for the persistence of symptoms are still debated from a scientific point of view, the persistence of symptoms is a reality for a large number of patients who have not been treated early.
For these patients, the non-recognition of their persistent symptoms plunges them into a therapeutic no-man's-land, where few doctors wish to venture.
Through interposed dialogues, this movie will make a state of the art of scientific knowledge concerning tick-borne diseases, while restoring the manhandled dignity of many patients. From a social point of view, the human right’s abuses as a result, attested by the United Nations will also be discussed.
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Please, support "Did you say Lyme ?" to bring good answers to good…