From 2010 ALS (Motor Neuron Disease) caused by Lyme disease

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From 2010 ALS (Motor Neuron Disease) caused by Lyme disease

In this forest was NRK celebrity Lars-Jacob Krogh bitten by ticks. The family fears that the bite triggered the disease that killed him.
By Ivar Brandvol , Steinar Andersen Qvenild
G - Updated 5/8/2010 1:19 p.m

From being a fit husband, father and grandfather, was Lars-Jacob Krogh within months turned into patient care. In April, he died, aged 71. - He was shaky, lost the ability to speak slowly and lost 30 kg of weight. Finally, the doctors concluded that he had the horrible nerve disease ALS, and that he had no more than three years left, says his daughter Ellen Koht Brink.
The friends said goodbye to Lars Jacob Krogh family fought very hard to save Krogh. Now that he is dead, they want to create a fund which among other things can contribute to more research on the link between bacteria, ticks and ALS. -
German experts identified Borrelia bacteria in his blood. The little research that is available suggests that Borrelia can cause ALS. My dad was bitten by ticks before he got sick, and we think it hangs together. I remember how he hugged the tick between his fingers before he pulled it out, the way you definitely should not do.
Ticks bite may have killed dad says Koht Brink. Processed in Germany when the family received test results from Germany, they sent him in haste to Borreliosis Centrum Augsburg. At this institution, he spent four weeks last fall - but the treatment probably started too late. - Dad was so weakened that the doctors did not dare to give him the recommended doses of antibiotics. Instead, they gave him the soothing natural medicines, before we had to get him home, saying Koht Brink.
Alerts extreme tick-summer over the past six months, the family desperately witnessed Krogh became weaker and weaker. After he lost the ability to speak, he communicates a while to write messages in a book, but it was not long before he could not write. After Krogh had received the treatment of Augsburg, they also found that daughter and granddaughter had proven Borrelia infection. They were both formerly bitten by ticks. Taking ticks seriously! - It was a shock that we too were infected despite little visible symptoms. Now we go on antibiotics and expect to be healthy. It's bad to think of how many Norwegians are probably infected without knowing it, Borrelia can lie dormant long before it causes disease, she says. Lars Jacob Krogh is dead She hopes LJK memory Fund and action "ALS - find a cure "may provide information on research initiatives, as well as information about the disease and available aids for both doctors, the sick and their families. It can make it easier to make the correct diagnosis - quickly. - Here in Denmark where I live, there is a completely different focus on ticks. Experts believe the disease is about to affect the general population. Now health care in Norway has come out of dormancy. It is painful for us to know that dad might die after a small tick bite, she said. -
Not taken seriously - The Norwegian health care system does not take patients seriously, says Gerd Marit Berge, leader of the
Norwegian Lyme Borreliosis Society . She says that many patients have pointed to the tick bite as the start of major health problems, but have still been rejected by the health care system. Some members who have been diagnosed with ALS in Norway, have consulted experts in the U.S. and Germany at their own expense and have been diagnosed with Lyme disease instead. When they get home, there is no support from the health services, because the diagnosis comes from abroad. - We want to look at the specific facts and apply new knowledge instead of remaining a victim. We regret, however, that the health care system is not seeking such knowledge as maps and epidemiology, says Berge.

Connects Lyme disease and ALS
MORE RESEARCH: Doctor Rolf Luneng participated in the treatment of Lars-Jacob Krogh and want more research on neuroborreliosis and ALS welcome. Photo: NILS Bjåland

- Many patients have an ALS-like condition that is triggered by neuroborreliosis, said Dr. Rolf Luneng at Arena clinic in Oslo. He is borrelia treats, and Lars-Jacob Krogh was one of his patients. - It was detected borrelia in blood samples his. This can trigger or reinforce an ALS-like condition, but we lack sufficient research in this area. It is therefore encouraging that Krogh's family involved, says Luneng.Other professionals VG has spoken to admit that there is much uncertainty about the neurological disorders neuroborreliosis and ALS. reading: - We know too little about ticks Neurologist Treat Ljøstad at Southern Hospitality denies nor that neuroborreliosis may provide a clinical picture similar to ALS. - There is however little evidence that patients with secure ALS diagnoses have it because of neuroborreliosis, and I do not think patients with neuroborreliosis has a greater chance of developing ALS, says Ljøstad who received his Ph.D. in neuroborreliosis in 2008. Long waiting Rolf Luneng think it's a big problem that health professionals do not use the best diagnostic tool.- Norwegian authorities are using a 40 year old diagnostic theory that only reveals 20 percent of cases of Borrelia infection says Rolf Luneng to VG. 's why more patients choose to book analyzes from Germany for their own account for a safer diagnosis. - We have a huge influx of patients who do not feel they are being taken seriously in the public health system. Here at the clinic we now stop taking because of capacity problems, and eight-week waiting period. But we are trying to get into a doctor who can work with this treatment, says Luneng. Treat Ljøstad is dubious to book analyzes from Germany. - These tests are not scientifically researched and documented. Even in patients with a secure diagnosis, we rarely positive impact of this type of testing. When people without clear diagnoses go to Germany and have a positive impact on neuroborreliosis all the time, it does not make sense, says Ljøstad is critical that patients are at risk antibiotics for years because they mistakenly diagnosed with neuroborreliosis.

Lyme disease and ALS
Borreliosis
· Lyme disease is a tick-borne infectious disease caused by the bacterium Borrelia. Every four ticks carrying the bacterium.
· The disease is chronic and can cause skin lesions, arthritis, and make infection of the central nervous system.
· Neuro Lyme disease, which is most common in Norway, is a serious disease that left untreated can lead to serious sequelae or death.
· The disease has increasing incidence in Norway. ALS
· Amyotrophic lateral sclerosis (ALS) is an incurable nerve disease that attacks motor neurons in the spinal cord and brain.
· The average life span after diagnosis is between three and four years, but can range from six months to ten years.
· The disease occurs most often after the age of 50.
· Most patients die of lung failure because the power of the respiratory muscles disappears.

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