Those who think that we are in a civilized world, will feel deceived in regard to the treatment of children and adolescents with Lyme disease, neuroborreliosis and possible co-infections.

In light of the global disease-protest ... a guest post
Published on 8 May 2013
In the light of the world Lyme Disease protest

Google translation follows......

A post by Alice Hulscher, Netherlands, author of " The Walls of Jericho, Part 1 and Part 2 . "

Those who think that we are in a civilized world, will feel deceived in regard to the treatment of children and adolescents with Lyme disease, neuroborreliosis and possible co-infections.

If the problem of adult disease patients is already hard to describe, borders the situation of children in some cases to the unthinkable.

In recent years I have met many parents of children with Lyme-Borreliose/Neuroborreliose. These children were or are very physically ill. Some are affected by paralysis and seizures, and some even of severe physical disability.

In almost all cases, the presumption of parents to disease was either doubted or denied by the doctors.

Without exception, the Borrelia in the blood and any associated co-infections were finally detected in all. Despite the presence of an erythema migrans or a confirmatory blood tests after treatment is not adequate, no treatment, even after Misdiagnosis of erythema migrans these parents were not believed.

Just like my husband and did not believe me, was when we had the assumption that our son might be suffering from Lyme disease and we wanted to have examined him on it and co-infections, as our child looked ever worse among many other symptoms and we the doctors pointed to the possibility that Lyme disease can also lead to blindness.

I remember the pediatrician and infectious disease clinic of a large university to which, without ever having seen our son to have let alone ever tested him, came to the diagnosis that he certainly did not have Lyme disease. His boss knew it during a telephone counseling even more colorful to say: "I do not see any disease. I see very definitely no disease. "

That's right, Lyme disease is not seen in Lyme disease should be studied!

These physicians said to be clairvoyant?

The misery of the parents and their children is outrageous. These children are physically ill, very ill. Repeated doctors refuse to investigate, laugh off the problems, or think in residual or persistent symptoms that were sufficiently treated, or can perform lumbar punctures and maintain a negative one, that can be no question of Lyme disease. However, there are international studies that show that the cerebrospinal fluid may be quite negative in neuroborreliosis. So no disease or chronic neuroborreliosis?

Through lack of knowledge of scientific research, short or incorrect drug treatment, or no treatment, a "somatoform disorder" diagnosed in most cases, when physical symptoms persist or worsen.

A diagnosis based only on inadequate testing and the sad realization that many doctors are hardly familiar with the late stage of the disease and follow treatment guidelines that are not even on the current state of medical science.

These children are often forcibly admitted to university hospitals, to psychiatric or rehabilitation centers, without a court decision. With the only result of a dramatic deterioration in their health. In addition, parents are often accused of child abuse, without any proof. They would their child's disease, in which their child suffers supposedly not maintained, these "experts" say supposedly because the parents insist on a physical cause. Contact bans imposed on parents by the court or the respective instances. To opt for a different medical treatment, the right of choice is taken parent and child. Although one often children from the age of twelve does not trust himself to speak regarding their own medical treatment and decide. This is a violation of the universal rights of the child which is entered with Fussen!

There are expressions of abuse, perpetrated by these institutions, physicians and possibly supported by a judicial decision.

In some cases, the judge said because of the advice of "specialists" to even determine how long to take the eventual treatment. Aside from the fact that a judge may not make any medical claims, one must rightly ask, what is this a law?

Whose interests are served by such a law? In any case, there are not that serve the health and welfare of the child.

Also hence the misdiagnosis of medical and abuse within these academic institutions are often covered.

Any reasonable person can come to no other conclusion than that in these cases the judge unconsciously provides an active contribution to child abuse, which the child's health is even more damaged.

Through the gaps in the scientific research concerning the third stage of Lyme disease and chronic Lyme disease and chronic neuroborreliosis, by the lack Clarification of existing co-infection (a disease and neuroborreliosis affect significantly negative) and insufficient Lyme tests are these children at the mercy of ill-treatment and delivered.

You may think this happens not in Europe. I can assure you that this is indeed the case. The examples in this article are summarized in the Netherlands, the Scandinavian countries, Germany, Belgium, England and France.

It is assumed that this kind of excesses taking place worldwide. Several times I heard, to my horror the stories of parents whose children suffered or still suffer appalling conditions.

Isolation, fixation, not gain from food (child had paralysis in the arms and could not independently eat), leaving them in the urine or stool (the child was unable to walk independently to the toilet because his legs paralyzed were), forcible administration of psychotropic drugs, hours on the ground leaving behind a child with cerebral seizures by Lyme disease - all under the guise that this child would stop by itself with this behavior.

Even if it involves a mental illness, it is criminal to deal with patients! And all within the walls of most academic institutions! These kids know better than anyone what it means to live daily with pain and not being understood by doctors. Children are told that nothing is wrong with them that they have no pain, that all PLA only in their minds.

Some have been so damaged and mentally in addition to their physical illness.

How many children will still go through the same fate and the physical suffering as our son, before finally getting a "real" medical treatment?

How long will my doctors, psychiatrists, and other instances, accusing parents of child abuse, while the parents do nothing else than for the health and treatment of their child to fight?

How long should families are destroyed by false accusations and insufficient medical knowledge?

Chronic Lyme neuroborreliosis and have many faces, even in children! Lyme disease or chronic Lyme neuroborreliosis are multisystem diseases.

This results in a wide range of results in symptoms such as numbness, cramps, tremors, seizures, blindness, paralysis, cognitive problems, weakness and paralysis in the arms or legs, joint pain, tinnitus, severe headache, stiff neck, bladder weakness, abdominal pain and so on . The list is long and varied.

Many questions must be answered.

Many scientists should agonize over the coming years.

Just as science makes strides forward, the only way patients can be diagnosed and treated better and faster. Only in this way damage to children and their parents can be prevented.

Certainly much research in the field of Lyme disease / neuroborreliosis is required.

With new safety tests need to be developed that reflect the reliable results in both the early phase and in the late stage of the disease and it should be standard to investigate even after accompanying co-infections in the future.

But ... the previous deficiency may be a license for a doctor, a psychiatrist, for any nurse and not a court, so to behave towards children and their parents.

The inhumane conditions faced by children and their parents are delivered, are far from any medical, ethical and moral sense and are a crime against humanity in one part of the world where human rights and the rights of the child are very important.

© Alice Hulscher 2013

Im Licht des weltweiten Borreliose-Protests … ein Gastbeitrag

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