collecte section Bourgogne

https://www.helloasso.com/associations/association-france-lyme/collectes/section-bourgogne

Jennifer Brea: 'ME is not about fatigue or tiredness'

"Brea is cautious to talk about what has helped her combat ME symptoms because different things will help different people, but two antiviral drugs which came out of AIDS research now help keep her out of bed, she says.
She also takes Mestinon – a drug that combats muscle weakness.
“I share that not to say these drugs are the answer, but to offer hope and say there are probably drugs already on the market that have been developed for other conditions that could right now improve the quality of life for people living with this disease. And we’re not* trialling them, we’re not studying them and getting people the help that they need now.”"

 
 
 
Jennifer Brea was pursuing her PhD at Harvard when she fell ill with a fever which turned into years of illness. In the documentary Unrest, she tells the story of discovering and seeking treatment for ME (aka myalgic encephalomyelitis).
radionz.co.nz