Atteinte de la borréliose chronique persistante , babesia et bartonella ; le déni est grand , battons nous pour la faire connaitre la borréliose de lyme et ses coinfections ; 8 ans de bi et tri therapies d'antibiotiques auxquels j'ai ajouté une partie du protocole Buhner et autres
"The total confirmed and probable cases in Pennsylvania for 2012 is 5,033...the numbers might not tell the story of how many cases are truly Lyme disease."
"The total confirmed and probable cases in Pennsylvania for 2012 is 5,033...the numbers might not tell the story of how many cases are truly Lyme disease."
"We made a decision a few years ago not to confirm each case," he said, explaining the department takes the reports it receives from physicians about suspected cases.
"Lab results can sometimes cause confusion—one reason that the health department no longer confirms each case."
http://northallegheny.patch.com/groups/summer/p/are-north-allegheny-residents-at-risk-for-lyme-disease
"We made a decision a few years ago not to confirm each case," he said, explaining the department takes the reports it receives from physicians about suspected cases.
"Lab results can sometimes cause confusion—one reason that the health department no longer confirms each case."
http://northallegheny.patch.com/groups/summer/p/are-north-allegheny-residents-at-risk-for-lyme-disease
It has been sad week in the Lyme community.....RIP to the Lyme warriors that are no longer with us♥
It has been sad week in the Lyme community.....RIP to the Lyme warriors that are no longer with us♥
A lot of us seem to be struggling right now, from the loss that has hit so close to home for so many of us....or whether it be from herxing, flaring, treatment, no treatment, stress, lyme symptoms in themselves, It is VERY important to know we are not alone in our struggles with Lyme disease. so I am reposting this. There are hotline numbers in this post, please write them down, and turn to someone if your feeling hopeless.
We need to talk about something no one really ever wants to talk about....Suicide. I want you to know that there is help out there. You are not alone and we have all felt this way at one time or another suffering with this disease.
Lyme Disease is such a devastating disease. It is so easy to become isolated and desperate with the never ending symptoms that Lyme Disease causes. Not to mention the abandonment of friends and family, and the rejection of the medical community. If you are feeling this way please reach out. There are lots of groups that can help. It can be hard to reach out, or even embarrassing. But those are NOTHING compared to the loss that your family and friends will feel if they lose you. So please reach out to others. Other Lymies will understand. I’ts okay to feel lonely, depressed, angry, or alone. These are real feelings just as happiness, joy, and all those are. But remember this is an infection in your brain making you feel this way. It may be just temporary. Try to hold on. You never know what is around the corner.
See this link. http://whatislyme.com/if-you-ever-feel-suicidal/
There are hotlines, 24/7
Facebook pages etc. Here are a list of groups that may help you:
Call 211 or go here
http://www.211.org/
Suicide Hotlines
http://suicidehotlines.com/
24/7 Facebook Group
https://www.facebook.com/groups/204870786211189/
Facebook Help for Lymies
https://www.facebook.com/photo.php?fbid=2920165857467&set=a.1695656885508.88998.1660435643&type=1&theater
Kansas City Area
1-866-WARM-EAR or 913-281-225
Facebook Group- “Let’s Talk About It”
https://www.facebook.com/groups/182350125191244/
There was a young boy named Shea. Shea had Lyme disease and was very sick. The day before he went to heaven he asked his mom to “double pinkie swear” that she wouldn’t ever take her own life if something happened to him. It was hard, Roxi lived through some terrible losses, first her son, then her mom. But she kept her promise and today is on lyme treatment herself and enjoying a life with her grandkids. Had she done something different, she wouldn’t be here enjoying her life and her two grandkids, making memories. So to honor little Shea’s wishes, I would like to ask everyone who reads this to “double pinkie swear” that you will never make the decision to take your own life. Please close your eyes and picture yourself pinkie swearing with little Shea. Then go to the bottom of this page and sign your name in the comments section. This is your contract with Shea that you will always reach out to others when you need help and you will never do anything to hurt yourself.
Do you double pinky swear?
Make the "Double Pinkie Swear Promise" Suicide Prevention
whatislyme.com
Lyme Disease is such a devastating disease. It is so easy to become isolated and desperate with no hope, but please reach out, you are not alone, the lyme community understands and sticks together to comfort and support
Up to 45% of forestry workers infected with Lyme in Poland...
Up to 45% of forestry workers infected with Lyme in Poland...
http://www.ncbi.nlm.nih.gov/
http://www.ncbi.nlm.nih.gov/
Gearing up to beat back Lyme
Gearing up to beat back Lyme
"It is for Lyme Disease and I am trying to encourage local people to ride it and not use it necessarily as a race," Verner said. "It's part of the BUMPS series so it seems every year there are lots of riders riding it, but you know they're almost pro status and they're using it as a training exercise and I was just trying to get local people to have fun and try to do it."
http://www.manchesterjournal.com/community/ci_23736789/gearing-up-beat-back-lyme
"It is for Lyme Disease and I am trying to encourage local people to ride it and not use it necessarily as a race," Verner said. "It's part of the BUMPS series so it seems every year there are lots of riders riding it, but you know they're almost pro status and they're using it as a training exercise and I was just trying to get local people to have fun and try to do it."
http://www.manchesterjournal.com/community/ci_23736789/gearing-up-beat-back-lyme
Restoring some measure of balance to a flailing system will enable you to function and fight Lyme disease better.
If you're new to the world of Lyme disease and the labyrinths of research that it takes a sufferer into, then you may not know that
balancing the endocrine system is important. If not, you will soon learn that fixing endocrine problems is vital for healing, and that giving a little TLC to the thyroid and adrenal glands, in particular, is most important.
Balancing the system is tricky. I don't know if it's even possible as long as infections and trauma are present; however, if you leave your hormones to their own devices amidst such crises, you're likely to really fall apart, or at least feel as though you are. Restoring some measure of balance to a flailing system will enable you to function and fight Lyme disease better.
This usually starts with the adrenal glands. No, I don't mean the thyroid, I mean the ADRENALS. Many physicians and patients start on the wrong end of things by first giving the body thyroid hormone, but this isn't usually how it should be done.
Why? In Lyme disease and chronic illness, the thyroid often malfunctions as a result of the adrenal glands, which are pooped from having to deal with so many bugs, toxins and stress. Treating the thyroid first puts greater stress on the adrenal glands, which then exacerbates the whole endocrine problem. Not treating the thyroid, however, can also stress the adrenals, but if you sense you have adrenal fatigue, it's best to deal with this problem first.
How do you know if you have adrenal fatigue? While some symptoms of hypothyroidism (most chronic Lyme sufferers) and adrenal insufficiency overlap--for instance, fatigue, depression, digestive disorders, pain and cognitive problems are common in both-- if your problem is predominantly with the thyroid, weight gain will be more of an issue (as, when accompanied by adrenal insufficiency, people who are hypothyroid tend to lose weight, as a result of malabsorption). Also, following exercise, the person with adrenal fatigue will be exhausted afterwards, whereas the hypothyroid sufferer may actually feel a bit better. Consulting a complete list of symptoms and performing a few reliable tests will help you to ascertain a diagnosis.
To determine adrenal function, saliva tests, along with a clinical diagnosis, have thus far proven to be most reliable. Forget blood and urine and ACTH-stim tests. Most physicians don't even believe in adrenal insufficiency unless you have a case of Addison's (adrenal failure) because the latter tests are almost always wrong by displaying "normal" results in people whose adrenals are really in trouble. I won't go into other reasons why you shouldn't even bother with such nonsense tests here, but suffice it to say, if you want to know the true state of your adrenals, order a saliva cortisol test from CanaryClub.org, and then learn to interpret the results by visiting the Yahoo! group Adrenal Fatigue, or by ordering G. Poesnecker's book, "Mastering Your Life."
Blood tests for the thyroid can be a tad more reliable than those used for the adrenals, but this depends upon who you are. If your body has trouble uptaking thyroid hormone into its cells; if it cannot convert T4 (inactive thyroid hormone) into T3 (active thyroid hormone), or you have adrenal fatigue, which adversely affects thyroid conversion, tissue uptake and thyroid response, then blood test results will tell you nothing. You may get any kind of results under the sun, which may or may not match the true condition of your thyroid and whether your body is actually using the hormone.
Even if you do a complete blood panel, the results will only reflect the amount of thyroid hormone that is circulating in your blood; they will not reveal how much that your body is actually using. In the case of adrenal insufficiency, the scenario is even worse. You may have high levels of thyroid hormone in your blood, but it's not because your body is producing enough of the stuff; it's because your body lacks the cortisol to help uptake the thyroid hormone into the cells, or cellular receptors are reticent to accept the hormone for other reasons.
Like the adrenal glands, the best way to test for thyroid function is with a do-it-yourself, at home test. This one is even simpler.
Despite what Pharmafia-motivated physicians might tell you, taking your body's basal temperature is actually the best way to determine whether you are hypothyroid. This is done by placing a thermometer under your armpit first thing in the morning, for ten minutes, before you roll out of bed. Do this consecutively for about a week to obtain an average reading. If your temperature is 97.6 F or 36.5 C or less, you may be hypothyroid. This test, along with a clincial diagnosis of symptoms and perhaps a complete blood panel to confirm the diagnosis, is most appropriate. Sometimes, the blood tests help to ascertain a result but should not be used as a stand-alone to diagnose thyroid problems.
So once you have your test results and find a knowledgeable professional to help you interpret them, you can begin treatment.
Treating adrenal insufficiency I have found to be quite tricky. While taking adrenal glandular formulas may help some, not everyone benefits from them. Sometimes, the body rejects those that contain active cortisol, by shutting down its own cortisol production when it senses the presence of bovine or sheep cortisol in the blood. Response to synthetic cortisone may be better but higher doses must be used to compensate for whatever the body decides to stop producing, and synthetic cortisol can cause immune suppression and side effects when dosed improperly (which is a common occurrence). Glandular formulas may do the same, but they tend to be gentler than powerful, synthetic hormones such as hydrocortisone and prednisolone.
Yet, for those with moderately severe or severe adrenal insufficiency, taking a product containing cortisone may be beneficial, provided that appropriate doses (which are usually lower than those typically prescribed) are given.
As a basis, and as I have described in my book, "The Lyme Disease Survival Guide: Physical, Lifestyle and Emotional Strategies for Healing," the adrenals need lots of vitamin C and pantothenic acid, as well as a good, food-based multi-vitamin. Siberian ginseng can be helpful as an adrenal tonic but by itself, will not cure moderate to severe adrenal fatigue (as most supplements). Yet it can be a helpful adjunct to an adrenal fatigue protocol, as can rhodiola, which balances the endocrine system. A good quality licorice, such as Dr. Baschetti's (which is sold by the Clymer Healing and Research Center) can boost the adrenals by causing the body to retain cortisol longer than it normally would, but will not aid in cortisol production. Traditional chinese medicine (TCM), involving the use of other herbs to treat adrenal and other endocrine problems may also be a good solution. Check out C. Willis' TCM adrenal fatigue protocol in the Files section of the Yahoo! group, Adrenal Fatigue.
Finally, avoiding stress, sugar and stimulants are essential for helping the adrenal glands to recover.
Now, on to the thyroid. Fortunately, treating this gland seems to be a bit easier than treating the adrenal glands, but it is not without its complications. As mentioned in my book, some Lyme disease sufferers have trouble converting inactive T4 hormone (which is what most synthetic thyroid hormone supplements are made of), into T3 (active thyroid), and therefore, either pure, bio-identical T3, or a combination product such as Armour (hormone that is made from porcine thyroid glands) must be taken, instead of the synthetic stuff that is so commonly prescribed.
Furthermore,the body, in addition to T4 and T3, also makes T2 and T1, which are slight variants of the other two hormones. These latter two comprise only a small portion of the body's thyroid hormone production, yet tests have shown that they may be more involved in the body's processes than previously thought. For instance, T2 has proven to be more effective in liver and lipid metabolism than T3, and is involved in increasing the metabolism of heart, muscle and brown adipose tissue. While Armour is said to contain only T4 and T3, because it comes from the tissue of a pig's thyroid, it may also include the lesser-known and oft-ignored T2, and T1, which could be of benefit. It most closely resembles, in any case, human thyroid. However, if your body produces excessive amounts of "reverse T3" (this can be ascertained by a blood test), you may want to consider pure, bio-identical T3, but bear in mind that some health care practitioners believe that pure T3 is harder on the heart and liver than Armour.
Some people opt to supplement their diet with iodine. While iodine is necessary for the thyroid, if you take too much, your thyroid may actually decrease the amount of hormone it makes in order to compensate for the excess. (Kind of like the adrenals when they sense the presence of supplemental cortisol in the blood). Hence, if you take a prescription thyroid hormone, it's probably a good idea not to supplement your diet with too much iodine, since the hormone should technically give your body close to what it needs. If you don't take hormone, then you will have to somehow ascertain how much iodine is beneficial for you, which is not necessarily the amount prescribed on the bottle. Pay attention to how you feel at different doses. If you decide to use iodine, choose a high-quality product such as Lugol's. Also, keep in mind that the basis of thyroid hormone is the amino acid L-tyrosine, so you may want to supplement this amino acid, along with iodine and plenty of minerals, which are all involved in thyroid hormone synthesis (especially selenium).
Just one final word about hypothyroidism. Flouride negatively affects thyroid function, so stay away from flouridated water, toothpaste and other sources. Believe it or not, tea is grown in flouride-rich soil, so consider the possibility that your tea (as well as coffee) may suppress your thyroid function. Stick with lemon water, unless you know how your tea is made.
http://www.wellsphere.com/lyme-disease-article/treating-the-thyroid-and-adrenal-glands-in-lyme-disease/407807
When professional fisherman Kathryn Maroun fell ill with lyme disease and co-infections, she didn't know if she was going to live, let alone go fishing again.
This is a longer video but you will not regret watching it. It addresses the idea of consciousness in fish (so if animal right is your thing, you will appreciate it). It is the story of a woman forging a path in a traditionally man's field. But most significantly, it is the story of a woman battling back from the brink of life, taken from her by Lyme, and the successes she is achieving.
http://www.youtube.com/watch?v=uwGZG4HAa3A
http://www.youtube.com/watch?v=uwGZG4HAa3A
When professional fisherman Kathryn Maroun fell ill with lyme disease and co-infections, she didn't know if she was going to live, let alone go fishing again. Fortunately she survived and was able to go back out on the river. But the experience of confronting her own mortality transformed her views of the sport of fishing and of herself as an angler.In Evolution of an Angler, Maroun takes us on a thought-provoking journey as she struggles to balance her love for fishing with her concern for the fish.
![Kim please share with anyone who would like to purchase one of the shirts they are white with green writing to message me on here with the name and size. I will give them the price and I will mail them to them if need be. S,M,L, EXL $8.00 AND 2X-3X $10.00. thank you. Please message @[100004604861264:2048:Jeannine Webb] on facebook if you are interested. They are ALL solid white with a Lyme Disease Awareness ribbon on front and Kendrea's prayer of hope on back just as in this photo. @[1397457088:2048:Kendrea White]... <3](https://fbcdn-sphotos-g-a.akamaihd.net/hphotos-ak-ash3/s403x403/45926_10200327674170033_692532410_n.jpg)
Additional evidence presented suggests that some people may develop chronic infections, and the current antibody testing approach for Lyme disease may not identify the infections.
(Texas) Beware of ticks during summer
"His research, published in the May issue of The International Journal of Medical Sciences, is significant for several reasons. First, only one Lyme bacterial species, Borrelia burgdorferi sensu stricto, was previously recognized to cause disease in North America. Current testing methods and interpretation criteria, designed to detect just one species, may explain many of the complaints involving the unreliability of Lyme disease tests in the U.S.
“This study’s findings suggest that multiple Borrelia species may be causing Lyme disease in the Southeast, another tick species may also be transmitting it in the Southeast and that it may be much more common here than was previously thought,” says Clark. “Additional evidence presented suggests that some people may develop chronic infections, and the current antibody testing approach for Lyme disease may not identify the infections.
http://www.waxahachietx.com/midlothian/sports/zebra-mussels-are-spreading-in-texas/article_87f993b5-86f7-543c-b458-85a980cc9cc3.html
"His research, published in the May issue of The International Journal of Medical Sciences, is significant for several reasons. First, only one Lyme bacterial species, Borrelia burgdorferi sensu stricto, was previously recognized to cause disease in North America. Current testing methods and interpretation criteria, designed to detect just one species, may explain many of the complaints involving the unreliability of Lyme disease tests in the U.S.
“This study’s findings suggest that multiple Borrelia species may be causing Lyme disease in the Southeast, another tick species may also be transmitting it in the Southeast and that it may be much more common here than was previously thought,” says Clark. “Additional evidence presented suggests that some people may develop chronic infections, and the current antibody testing approach for Lyme disease may not identify the infections.
http://www.waxahachietx.com/midlothian/sports/zebra-mussels-are-spreading-in-texas/article_87f993b5-86f7-543c-b458-85a980cc9cc3.html
The bacterial spirochete can invade and infect any organ in humans and animals. If not diagnosed early, if left untreated or not treated adequately, it may develop into debilitating arthritic, cardiac, neurological, digestive, or psychiatric conditions. It can cause long-term disability or can even be fatal.
Lyme Disease United Coalition....
The bacterial spirochete can invade and infect any organ in humans and animals. If not diagnosed early, if left untreated or not treated adequately, it may develop into debilitating arthritic, cardiac, neurological, digestive, or psychiatric conditions. It can cause long-term disability or can even be fatal. It can cross the placenta into the fetus, and its DNA can be found in breast milk. It is called the “Great Imitator” for it mimics other diseases such as: Multiple Sclerosis, Parkinson’s Disease, ALS, Fibromyalgia, Rheumatoid Arthritis, Chronic Fatigue Syndrome, or an array of mental disorders.
http://www.lduc.org/
The bacterial spirochete can invade and infect any organ in humans and animals. If not diagnosed early, if left untreated or not treated adequately, it may develop into debilitating arthritic, cardiac, neurological, digestive, or psychiatric conditions. It can cause long-term disability or can even be fatal. It can cross the placenta into the fetus, and its DNA can be found in breast milk. It is called the “Great Imitator” for it mimics other diseases such as: Multiple Sclerosis, Parkinson’s Disease, ALS, Fibromyalgia, Rheumatoid Arthritis, Chronic Fatigue Syndrome, or an array of mental disorders.
http://www.lduc.org/
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