conference "Beyond Lyme & Other Chronic Illnesses: Reclaiming Your Health and Well-Being

Dr Horowitz dit qu'il ya  un nouveau médicament utilisé conjointement avec d'autres, et certains  patients incurables pourraient être  traités avec succès: dapsone utilisé dans la tuberculose et la lèpre.

"As Dr. Horowitz explains, he is typically successful in getting 92% of his patients better. But there is an “8%” that are the most difficult to treat. Could this breakthrough break the code for closing in on the 8% of people that are most difficult to get better? It could. I’ll never forget those chilling yet cheerful words: “We are closing in on the 8%,” Dr. Horowitz whispered.
It works like this. Dr. Horowitz first combines 2-3 intracellular antibiotics to reach the persister bacteria hiding in cells. This would be the “triple persister” cocktail. Then he pulses with a cellular antibiotic. This pulsing has been shown to be effective based on the incredible work of professor and researcher Kim Lewis of Northeastern University. Dr. Horowitz has found this regimen to be very successful for people who continue to have symptoms or relapses. BUT FURTHERMORE, he has now found with the help of the work from Dr. Zhang that adding dapsone (pyrazinamide) to this regimen for the most difficult of cases…could be THE key to perishing the persisters for once and for all. Dapsone being that potential mycobacterium super drug used against Tuberculosis and leprosy."
Kripalu: "Closing in on the 8%"
Richard Horowitz, MD, and his wife, the lovely Lee, kicked off the weekend conference "Beyond Lyme & Other Chronic Illnesses: Reclaiming Your Health and Well-Being," on the evening of Friday, D...
lymewhisperer.com

Kripalu: "Casting a Wider Net" , Dr Richard Horowitz


Kripalu: "Casting a Wider Net"
After Friday, our first night at Kripalu (Kripalu: "Closing in on the 8%), we were certainly better educated on the Lyme-MSIDS (Multiple Systemic Infectious Disease Syndrome) questionnaire and the ...
lymewhisperer.com

Culture evidence of Lyme disease in antibiotic treated patients living in the Southeast -


Culture evidence of Lyme disease in antibiotic treated patients living in the Southeast - Daniel...
by Daniel J. Cameron, MD, MPH Scientists are increasingly focusing their attention…
DANIELCAMERONMD.COM|DE DR. DANIEL CAMERON

Ocular Signs of Lyme Disease - Lyme


smile
Ocular Signs of Lyme Disease - Lyme
Overview Lyme disease is a tick-borne disease that can cause symptoms in many body systems, includin
LYME.BAYDAKH.COM

The Surprising Link Between Fibromyalgia and Lyme Disease



The Surprising Link Between Fibromyalgia and Lyme Disease
If you’ve been diagnosed with fibromyalgia, you know better than anyone the pain, frustration and anxiety associated with this difficult to define disease. Ask…
TOPTHINGS2KNOW.COM


___________________________________________________________________________________________

Miss Tik : "Brouillard cérébral"

"Brouillard cérébral"

Je cherche quoi, là?
Déconnectée, absente, mes pas s’arrêtent net
Au milieu de la pièce, devant des placards clos.
Tu disais quoi, là?
Mais si, je t’écoutais! Pardon, vas-y répète,
Je vais me concentrer sur chacun de tes mots.

Et ces lignes que mes yeux suivent par simple habitude,
Mais qui n’ont plus de sens et ne s’impriment pas!
Et ces phrases qui dansent me laissent comme certitude
Que mon cerveau sur “off” ne fonctionne vraiment pas...

Où sont mes clés? Où vais-je?
Et pourtant j’étais sûre d’une chose importante...
Un rendez-vous peut-être? Ou quelqu’un à appeler?
Rien. Il ne reste rien.
Grand vide sidéral: aux abonnées absentes,
En zone sinistrée, ma mémoire envolée!

Et cet affreux silence étirant les secondes
Jusqu’à ce que se rompe le fil de mes pensées;
Fréquences parasites envahissant mon monde,
Jusqu’à chaque neurone à présent dévasté...

Allo la Terre? Il y a quelqu’un?
Laissez-moi donc tranquille: j’ai éteint la lumière,
Ne rêve que de dormir dans ce confort ouaté,
Cet accueillant brouillard, ce néant mortifère,
Où j’oublierai sans doute avoir même existé.

© Elusive Reclusive (16/12/2015)

LYMÉE – ENTREZ DANS MON MONDE

LYMÉE – ENTREZ DANS MON MONDE

Diagnostiquée lymée
Drôle de nom ainsi nommé
Derrière cette dénomination
Que se cache-t-il vraiment ?
D’abord et avant tout, la douleur
Celle qui me fait verser quelques pleurs
Et te laisse échapper quelques cris incontrôlables, elle est parfois si violente
Le jour : des douleurs omniprésentes et lancinantes,
Des coups de poignards, toute la journée, assénés,
Migratoires, sur diverses parties du corps
Des sensations de brûlure dans les muscles
Dans les tendons, dans les articulations
Fonte musculaire, douleurs ophtalmiques, douleurs dentaires,
Céphalées intenses, douleurs oculaires.
Hypertension et tachycardie
Vont venir, dans la journée, compléter mes polyalgies
Mon corps hurle de douleurs
Mon corps plie sous la douleur
Les nuits : agitées, courtes, hachurées
Douloureuses, non récupératrices, perturbées
Des tachycardies affolantes et effrayantes
Impossible de sortir de cet état de torpeur
Et toutes mes nuits me font peur.
Mon corps hurle de frayeurs.
Appareil digestif et transit perturbés
Carences vitaminiques, système immunitaire affaibli
Une fatigue immesurable, inqualifiable
Mon corps est fatigué
Mon corps est éreinté
Mon corps est épuisé
Mon corps n’hurle plus, il s’est tû,
Tout te demande des efforts immenses toute la journée
Dans cette force qui t’abandonne, encore puisait,
Mais que devons-nous en plus gérer ?
Bien sur, le brouillard cérébral
Cet état où ton corps est là
Mais ton esprit ailleurs, tourmenté,
Des périodes d’absence
Tu n’es plus là que physiquement
Tu n’arrives plus à assimiler
Mon esprit n’est plus là
Dans ma cage, emprisonnée
Dans mon monde, enfermée.
Mon corps est seul, mon esprit l’a lâchement abandonné.
Cette lutte, tous les jours, recommencer
A tous moments de la journée
Voilà ce qu’est le monde des lymés
Vous ne pouvez même pas imaginer
Cette lutte, cette bataille intérieure
Que nous devons mener de front
Avec ce corps tellement affaibli.
Mon corps plie sous la douleur,
Mon corps hurle de douleurs
Mon corps s’épuise
Mon corps a mal
Mon esprit est ailleurs
Mon entourage ne comprend pas ce qui me met dans un tel état
Il ne faut pas leur en avoir, ils ne savent pas, ils ne le vivent pas
Je voudrais juste un peu de compréhension,
Qu’on m’épargne toutes ces sollicitations.
J’ai traversé tellement d’épreuves
Pour arriver jusqu’ici
« Diagnostiquée Lymée »
Après un parcours médical chaotique
Mon corps est bien épuisé de toutes ces années passées,
Ma maladie a bien progressée,
Il est enfin tombé ce diagnostic tant espéré.
J’entre dans ce monde, le monde des lymés,
Le monde des lymés et toute sa complexité.
Je ne cherche pas une quelconque vengeance
Mais, de cette pathologie, une reconnaissance.


©Louve (VC) – 16-17-18/12/2015

LYME/LYME/LYME/…témoignage d'un vétérinaire



LYME/LYME/LYME/…
Mercredi 09 décembre 2015. Je sais d’emblée que ce texte sera long à lire, peut être aussi pour les non « initiés » à la médecine, compliqué à comprendre mais je vais essayer d’être au maximum pédagogue et didactique en simplifiant au maximum l’aspect technique des choses pour rester compréhen…
medecinelyme.unblog.fr

Stig calls for action on Lyme disease Lyme disease sufferer and former Newcastle Knights five-eighth Ryan Stig has called on politicians and ­doctors to “stop the arguing and start trialling treatment” for the condition in Australia.

Haute 100: Steven A. Cohen's Foundation Donates $6.5M to Lyme Disease

Haute 100: Steven A. Cohen's Foundation Donates $6.5M to Lyme Disease
On Wednesday, Dec. 16th, the Steven and Alexandra Cohen Foundation donated $6.5 million to Lyme disease research.
hauteliving.com

Playing Catch-Up: Lyme Disease Research Is Finally—and Rightly—Drawing More Funding

Playing Catch-Up: Lyme Disease Research Is Finally—and Rightly—Drawing More Funding - Inside...
Things are looking up for sufferers of Lyme disease, at least in terms of awareness and grantmakin...
insidephilanthropy.com

Yolanda explains why Taylor has only made her want to fight harder to get the word out about Lyme Disease

Yolanda Foster: What I Saw Was Ignorance ‪#‎LymeDiseaseChallenge‬ ‪#‎InvisibleIllness‬ ‪#‎WeGetIt‬
Yolanda explains why Taylor has only made her want to fight harder to get the word out about Lyme Disease
Yolanda Foster: What I Saw Was Ignorance
Hello my friends in Bravo land, A new week, a new chapter in my life. Sitting amongst Tupperware boxes and plenty of "things" to unpack in my new home, I realize how much "stuff" we consume over time. Stuff that at one point felt…
bravotv.com

Babesiosis is one of the most frequently observed co-infections in my Lyme patients that contributes to persistent illness.


From Dr Horowitz

Babesiosis is one of the most frequently observed co-infections in my Lyme patients that contributes to persistent illness. There are many species of Babesia, and Babesia microti and Babesia WA-1/duncani are the most common species in the US, with Babesia divergens and Babesia venatorum (EU-1) being commonly seen in Europe. Other species are emerging in the US like Babesia odocoilei
(Increased diversity of zoonotic pathogens and Borrelia burgdorferi strains in established versus incipient Ixodes scapularis populations across the Midwestern United States. Hamera, S. et al. DOI: 10.1016/j.meegid.2014.06.003). In this article published in Cellular Microbiology, the authors describe details of Babesia's biology that may help us to control parasite populations. Any Lyme patient with ongoing unexplained malaria-like symptoms such as fevers, day and night sweats, chills, an unexplained cough and "air hunger/shortness of breath" may have Babesiosis. A Babesia panel, checking titers (IFA for B.microti and B. duncani), PCR's and RNA testing (FISH, IgeneX laboratory) may help identify Babesiosis. A differential diagnostic map to identify the multiple causes of fevers and sweats can be found on page 68 of Why Can't I Get Better?". 

Babesia divergens builds a complex population structure composed of specific ratios of infected...
Accepted Article (Accepted, unedited articles published online and citable. The final edited and typeset version of record will appear in future.)
onlinelibrary.wiley.com
http://onlinelibrary.wiley.com/doi/10.1111/cmi.12555/abstract

Borréliose de Lyme : Symptômes neuro-psychiatriques


Borréliose de Lyme : Symptômes neuro-psychiatriques - R B-L F cimt
Symptômes neuro-psy : le dr Lorenz, médecin psychiatre explique la borréliose
WWW.RESEAUBORRELIOSE.FR|PAR RÉDACTION RBLF

Using public surveillance to study insect vectors of Chagas disease in Texas

Using public surveillance to study insect vectors of Chagas disease in Texas
"Chagas disease is caused by a parasitic protozoan (Trypanosoma cruzi) and transmitted via triatomine insects known locally in Texas as 'kissing bugs.' Due to the success of community based triatomine surveillance and collection in Central and South America, researchers set up a citizen science program to gain insight into the distribution and infection prevalence of triatomine insects in Texas."
Using public surveillance to study insect vectors of Chagas disease in Texas
Chagas disease is caused by a parasitic protozoan (Trypanosoma cruzi) and transmitted via triatomine insects known locally in Texas as 'kissing bugs.' Due to the success of community based triatomine surveillance and collection in Central and South America, researchers set up a citizen science progr…
SCIENCEDAILY.COM

Despite presenting with symptoms at just 4 years old, she went misdiagnosed for over 30 years by specialist in almost every medical field.



This is Irene (@irina_without_lyme), she is one of the #FacesOfLyme. Despite presenting with symptoms at just 4 years old, she went misdiagnosed for over 30 years by specialist in almost every medical field. Finally diagnosed with#Lyme this past October, she's had to put her career as a journalist on hold to focus on treatment and regaining her health. A citizen of Russia, Irene is proof that #LymeDisease is a global issue.#EndTheSilenceOnLyme

Dépression : la piste de l'origine infectieuse


Dépression : la piste de l'origine infectieuse
« Dépression : la piste de l'origine infectieuse » Les Echos Paul Molga indique…
CHRONIMED.OVER-BLOG.COM

I Want A Refund! David Demands Yolanda Pay Him Back For Medical Bills


From facing claims and rumors that she has been faking her Lyme disease, Yolanda Foster now says that her disease is one of the reasons for her divorce with husband David Foster, which was announced earlier this month.

 From facing claims and rumors that she has been faking her Lyme disease, Yolanda Foster now says that her disease is one of the reasons for her divorce with husband David Foster, which was announced earlier this month. “'Well, chronic long-term illness is extremely challenging,' she told [RHOBH] show host Andy Cohen, implying that her diagnosis caused marital issues. 'Not only for the person [who is] sick but also for the caregiver. It for sure changed the dynamic of the relationship.'”
Yolanda Foster Opens Up On Divorce Drama: 'Sometimes Your Heart Needs More Time'
Yolanda Foster continues to share her journey of health and heart to Instagram followers, getting even more personal about her painful divorce from husband…
RADARONLINE.COM

Bartonella, a Stealth Infection


Bartonella, a Stealth Infection - Nutritional Health Now
Bartonella is a stealth infection capable of hiding from your immune system leaving you with chronic health challenges and unexplained illness.
NUTRITIONALHEALTHNOW.COM

Petition: Develop accurate NHS tests and effective treatment protocols for Lyme disease.


Petition: Develop accurate NHS tests and effective treatment protocols for Lyme disease.
The incidence of Lyme disease is increasing dramatically across Europe. Every year, hundreds of thousands of people contract Lyme disease and because of…
PETITION.PARLIAMENT.UK

What Happened When I Got Diagnosed With Lyme Disease


What Happened When I Got Diagnosed With Lyme Disease
Bella Hadid and her family suffer from it, as does Avril Lavigne – but what is Lyme disease? Where does it come from? And how do you know if you might have it?
SOCIAL.REFINERY29.UK

5 Things I Wish You Knew About Lyme Disease


5 Things I Wish You Knew About Lyme Disease
What would you add to this list?
THEMIGHTY.COM|PAR STEPHANIE SPICER

Moratorium needed on action against Lyme disease doctors


Moratorium needed on action against Lyme disease doctors
The lives of Australians are at stake. Doctors treating Lyme disease in this country must be allowed to continue their vital work until a thorough…
JOHNMADIGAN.COM.AU

We are working to spread awareness about Lyme Disease. Our stats show that 61.7% people with Lyme Disease are not able to work

We are working to spread awareness about Lyme Disease. Our stats show that 61.7% people with Lyme Disease are not able to work.. This is very hard. Too many people suffer every day and are trapped inside a body that doesn't allow them to live a decent life. Days of extreme fatigue, weakness, dizziness, pains, general malaise, nausea, memory problems..
Join the map and help us to tell the world that we are thousands fighting every day against Lyme Disease. Together we are stroger! You are not alone anymore.
World map of Lyme Disease
Connect with people who share your condition and help each other. World Maps of Chronic and Rare Diseases and other syndromes and conditions. The main purpose of the project is to help people with chronic and rare diseases and other conditions. Living with these conditions is usually hard and it is…
DISEASEMAPS.ORG

Pirate FM - News - VIDEO: Cornish Mum's Lyme Disease Fight


Pirate FM - News - VIDEO: Cornish Mum's Lyme Disease Fight
St Austell mum says it took six years for her daughter to be diagnosed
PIRATEFM.CO.UK

Better Watch Out for Deer Ticks This Holiday Season


Better Watch Out for Deer Ticks This Holiday Season
Unseasonably warm fall temperatures in the northeastern United States mean that blacklegged ticks (Ixodes scapularis), also known as deer ticks, are active later into December than is usually the case.
LIVESCIENCE.COM

Since Dr. Bell assumed the position, she has led the response to several infections, but Not Lyme


Since Dr. Bell assumed the position, she has led the response to several infections, but Not Lyme
Director, National Center for Emerging and Zoonotic Infectious Diseases (NCEZID)
CDC.GOV

Lyme disease spirochetes


Lyme disease spirochetes
Various Lyme disease spirochetes
YOUTUBE.COM

On-Lyme Foundation - Jeroen’s suicide due to Lyme


On-Lyme Foundation - Jeroen’s suicide due to Lyme
Jeroen Link ended his life in December 2013, because he could not pay his treatments for Lyme anymore. This is his story, told by his father Johan. We...
ON-LYME.ORG

Taking power over a disease "that has brought us to our knees"


Taking power over a disease "that has brought us to our knees" | LymeDisease.org
This is the first of a series of guest blogs by people who have enrolled in MyLymeData. By Sherrill…
LYMEDISEASE.ORG

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