The more people who answer the survey, the more
valuable the results become
http://lymedisease.org/news/lymepolicywonk/lymepolicywonk-speak-out-take-our-new-survey-on-the-impact-and-cost-of-lyme-disease.html
LYMEPOLICYWONK: LymeDisease.org launches new patient survey on the Impact and Cost of Lyme Disease.
12th February 2013
LymeDisease.org is conducting a new survey regarding the Impact and Cost of Lyme Disease. We need your participation! Our survey on Access to Care and Burden of Illness drew over 4,000 responses and turned out to be the largest survey of Lyme patients ever conducted in the United States. The survey revealed that 65% have had to cut back or quit work or school and 25% have been on disability. The results were published in a major peer-reviewed journal, Health Policy and used as the basis for a presentation by Lorraine Johnson, JD, MBA at Congressman Gibson’s forum in New York last year. The new survey continues this work and looks at the economic and quality of life impact of Lyme disease.
To participate in this survey, click here.
Communicating the costs of Lyme disease to the patient, the immediate family, the community and, ultimately, the nation increases the pressure for Lyme disease healthcare reform. To accomplish this, we conduct nationwide surveys to provide policy makers information vital to healthcare policy in Lyme disease. Our goal is to open the space for conversations in the public health arena about what is really going on with Lyme patients from their perspective. We are trying to give voice to the patient community, which is all too often completely ignored in conversations about Lyme disease.
Our new survey focuses on the economic cost associated with chronic Lyme Disease and the quality of life impact of Lyme disease.
- Take the Impact and Cost of Lyme Disease survey.
- Read the Lyme Policy Wonk blog summary of the results of the Healthcare Access and Burden of Care Survey.
- Watch a presentation of the findings of the Healthcare Access and Burden of Care Survey by LymeDisease.org CEO, Lorraine Johnson, JD, MBA at the forum hosted by US Congressman Gibson in New York on May 21, 2012 or read of Lyme Policy Wonk blog summary of the presentation.
- Sign up, if you would like to receive information on our surveys.
The LYME POLICY WONK blog is written by Lorraine Johnson, JD, MBA, who is the Chief Executive Officer of LymeDisease.org, formerly CALDA. Contact her at lbjohnson@lymedisease.org.
