http://lymedisease.org/research/survey-thankyou.html
LYMEDISEASE.ORG PATIENT SURVEYS
Thank you for your interest in LymeDisease.org Surveys. We will send you the results of surveys when they are compiled.
Communicating the costs of Lyme disease to the patient, the immediate family, the community and, ultimately, the nation increases the pressure for Lyme disease healthcare reform. To accomplish this, we conduct nationwide surveys to provide policy makers information vital to healthcare policy in Lyme disease. Our goal is to open the space for conversations in the public health arena about what is really going on with Lyme patients from their perspective. We are trying to give voice to the patient community, which is all too often completely ignored in conversations about Lyme disease.
Our last survey of over 4,000 patients revealed that 65% have had to cut back or quit work or school and 25% have been on disability. We believe this is the largest survey of Lyme patients ever conducted in the United States. The survey was published in a major peer-reviewed journal, Health Policy. (Johnson, L., A. Aylward, Stricker, R. (2011). "Healthcare access and burden of care for patients with Lyme disease: a large United States survey." Health Policy 102(1): 64-71.) We have just launched a new survey focusing on the impact and cost of Lyme disease.
- Take the new survey
- Read the Lyme Policy Wonk blog summary of the results of the Healthcare Access and Burden of Care Survey.
- Watch a presentation of the findings of the Healthcare Access and Burden of Care Survey by LymeDisease.org CEO, Lorraine Johnson, JD, MBA at the forum hosted by US Congressman Gibson in New York on May 21, 2012 or read of Lyme Policy Wonk blog summary of the presentation.
- Sign up if you would like to receive information on our surveys.
>http://lymedisease.org/
(its a little lengthy but worth it)
Communicating the costs of Lyme disease to the patient, the immediate family, the community and, ultimately, the nation increases the pressure for Lyme disease healthcare reform. To accomplish this, we conduct nationwide surveys to provide policy makers information vital to healthcare policy in Lyme disease. Our goal is to open the space for conversations in the public health arena about what is really going on with Lyme patients from their perspective. We are trying to give voice to the patient community, which is all too often completely ignored in conversations about Lyme disease.
Our last survey of over 4,000 patients revealed that 65% have had to cut back or quit work or school and 25% have been on disability. We believe this is the largest survey of Lyme patients ever conducted in the United States. The survey was published in a major peer-reviewed journal, Health Policy. (Johnson, L., A. Aylward, Stricker, R. (2011). "Healthcare access and burden of care for patients with Lyme disease: a large United States survey." Health Policy 102(1): 64-71.) We have just launched a new survey focusing on the impact and cost of Lyme disease.
(its a little lengthy but worth it)
Communicating the costs of Lyme disease to the patient, the immediate family, the community and, ultimately, the nation increases the pressure for Lyme disease healthcare reform. To accomplish this, we conduct nationwide surveys to provide policy makers information vital to healthcare policy in Lyme disease. Our goal is to open the space for conversations in the public health arena about what is really going on with Lyme patients from their perspective. We are trying to give voice to the patient community, which is all too often completely ignored in conversations about Lyme disease.
Our last survey of over 4,000 patients revealed that 65% have had to cut back or quit work or school and 25% have been on disability. We believe this is the largest survey of Lyme patients ever conducted in the United States. The survey was published in a major peer-reviewed journal, Health Policy. (Johnson, L., A. Aylward, Stricker, R. (2011). "Healthcare access and burden of care for patients with Lyme disease: a large United States survey." Health Policy 102(1): 64-71.) We have just launched a new survey focusing on the impact and cost of Lyme disease.
