Atteinte de la borréliose chronique persistante , babesia et bartonella ; le déni est grand , battons nous pour la faire connaitre la borréliose de lyme et ses coinfections
; 8 ans de bi et tri therapies d'antibiotiques auxquels j'ai ajouté une partie du protocole Buhner et autres; rechute en 2016 il faut recommencer les traitements
photo: NEXUS 2012
The UK's main charity for Lyme patients now has a blog
The UK's main charity for Lyme patients now has a blog. Their leaflets are really good this year :) and they are doing so much work for us in the Lyme struggle.
But we still need an open forum for Lyme patients, on the web, with advice and topics that can be stored and filed properly. And not associated with a charity so people can be totally frank in what they say. Something like www.lymenet.org would be great.
Just an idea, because Facebook speeds along and doesn't really store anything. A website like lymenet.org would be so useful - patients there can track back over the years and see thousands of details from patients who tried different medications etc...
Perhaps some of us in the UK should club together and pay for one?