collecte section Bourgogne

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How disease politicisation harms patients

How disease politicisation harms patients

This series of interviews affirms that the world IS WATCHING, and that as Australian Lyme patients, you are seen, you are heard, and you are believed.
LDAA CEO Sharon Whiteman interviews Professor Christian Perronne, MD, PhD, Professor of Infectious and Tropical Diseases at the Faculty of Medicine Paris-Ile de France-Ouest, University of Versailles-St Quentin en Yvelines (UVSQ), Paris-Saclay, France. He is chief of Department of Medicine at the Raymond Poincaré University Hospital in Garches (Hauts-de-Seine), belonging to Assistance Publique – Hôpitaux de Paris, the Greater Paris University Hospitals.
Professor Perronne describes how the science of Lyme disease has been politicised by vested interests in the US, thwarting research globally. Cautiously optimistic that the passing of the Tick Act in the US could result in a commercial boost that encourages some much-needed innovation in testing, Professor Perronne is clear that denying the existence of chronic Lyme disease is a human rights violation, and that attributing Lyme symptoms to psychiatric disorders only prolongs patients' suffering.
Professor Perronne questions why the standard medical diagnostic method of a 1-month trial of treatment is not applied to cases of Lyme disease. By this method, a response to a one-month trial indicates that the treatment approach is valid and should be continued. He considers the trials that conclude that long term antibiotics are ineffective are flawed, based as they are on an expectation of cure after a mere 3 months. He also questions why malaria is routinely diagnosed in the presence of negative blood test results, but Lyme is not?
Patients know that politicisation has dominated Lyme science for far too long. LDAA is grateful for Dr Perronne’s persistence and outspoken defence of the truth, and we know patients will be relieved to know that the world IS watching what happens in Australia.


https://www.youtube.com/watch?v=iqryHawuqXY&feature=youtu.be&fbclid=IwAR3SkybZleu-mkPmHD_nnBcSk09BD6JxB7TKqvEr9aBT_7Nzec1yB-vgYGw 

 

 

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Professor Perronne outlines his persistent and long-standing support for the recognition of best practise diagnosis and treatment of Lyme disease, including persistence. Recorded on December 23rd, 2019