MS Cure?
Some doctors contend that Multiple Sclerosis (MS) is triggered by an infection, which could be cured with antibiotics.
Narration
Is it possible that Multiple Sclerosis can be cured? According to these medical mavericks, the answer is yes.
Dr Paul Thibault
This is a paradigm shift in the way we understand the disease.
Narration
They argue that an infection is what triggers the disease.
Dr David Wheldon
The immune system sort of knows it’s there but can't do much about it.
Dr Maryanne Demasi
Incredibly, the treatment has been right under our noses. Here, I explore an unpopular medical theory that has been flying under the radar until now.
Narration
At this home in London lives a man who believes he’s cured his wife of an incurable disease.
Dr David Wheldon
I don’t like using the word ‘cure’ because it’s sort of tempting providence, but I feel in my heart of hearts that the disease has gone.
Sarah Longlands
If it wasn’t for David I would be probably dead or curled up in a corner of a nursing home, useless to the world.
Dr David Wheldon
Well, meet the artist, Sarah.
Sarah Longlands
Hello.
Dr Maryanne Demasi
Hi Sarah, how are you doing?
Narration
Sarah, a talented artist, was diagnosed with MS in her twenties.
Sarah Longlands
My right arm started to go numb and I couldn't use it at all, it was just hanging in front of me.
Dr David Wheldon
Sarah was told that there was absolutely nothing that medicine could do for her. I, I was filled with fear. Here was a person I’d married – an alert, intelligent, bright, creative person, who, to be quite blunt, was, was losing her mind.
Narration
It’s widely accepted that MS is an auto-immune disease. The body’s immune system destroys the myelin sheath around nerve fibres. Patients develop lesions in the brain and spinal cord, and eventually lose their ability to think and move.
Dr Maryanne Demasi
So this is, this is essentially damage in the brain?
Dr David Wheldon
It’s damage, yes.
Narration
David, an expert in infectious diseases who used to treat MS patients, drew on all his experience to formulate a revolutionary theory. He believed that Sarah’s MS was triggered by an infection. The bacterium he honed in on was called Chlamydia Pneumoniae.
Dr David Wheldon
When one thinks of Chlamydia, one automatically thinks of venerally transmitted Chlamydia. Chlamydia Pneumoniae is a respiratory pathogen. It’s spread by droplet infection – coughing and sneezing.
Narration
Infection is so common that it’s likely you’ve been exposed by the age of twenty. The bacteria finds shelter inside blood vessels and nerves, causing low-grade infection over decades. Convinced that Sarah’s body was under attack from this bacterium, David worked tirelessly to find a solution. Together with a colleague in the US, he formulated a cocktail of antibiotics to eradicate this insidious bacterium.
Dr David Wheldon
It’s been shown that a single antibiotic doesn’t eradicate the organism, and these three antibiotics work together in a very specific way.
Dr Maryanne Demasi
How long does the treatment go for?
Dr David Wheldon
I think the treatment should be for a minimum of a year.
Dr Maryanne Demasi
A year?
Dr David Wheldon
Yes.
Dr Maryanne Demasi
That’s a long time on antibiotics.
Dr David Wheldon
It, it is a long time, but it’s a very, very difficult organism to eradicate.
Narration
Sarah’s neurologist insisted she would never regain her function. But David showed me the lesions on Sarah’s MRI scans before and after treatment. The results were nothing short of miraculous.
Dr David Wheldon
I’ve never seen anything like it before. Some lesions have quite literally vanished. Sarah had been numb from the waist down and literally couldn't feel her legs. Sensation came back fairly quickly, in, in, in five or six months.
Dr Maryanne Demasi
Did this shock the neurologists?
Dr David Wheldon
Ah, the neurologist wouldn't see the scan. He says, he says, ‘I’m not looking.’
Dr Maryanne Demasi
So did this, did this surprise you?
Dr David Wheldon
It absolutely shocked me. I think very few people know about the possibility of a chlamydial causation of MS, and therefore very few people will understand the possibility of treatment. The ignorance about this organism is immense.
Narration
The problem is, this bacterium is notoriously difficult to detect in patients. Only a few labs in the world have the expertise.
Dr David Wheldon
Technique is a limiting factor, and to say you don’t isolate something as difficult as this is, like I say, if you search a haystack for ten minutes and say, ‘I see no needle’, really you’re not telling anyone very much.
Dr Maryanne Demasi
This kind of paradigm change in the way we understand and treat disease often causes dissention among the ranks. And this wouldn't be the first time that a radical theory was dismissed by mainstream medicine.
Narration
Australian scientists, Warren and Marshall, went to extraordinary lengths to prove that stomach ulcers were not caused by stress, but by a bacterial infection. Marshall took the ultimate leap of faith and infected himself with the bug.
Barry Marshall
I said to my wife, ‘I took the bacteria, I’ve got the illness.’ And she said, ‘You did what?’
Narration
Fortunately a simple course of antibiotics cured him. The pair won a Nobel Prize in 2005.
Similarly in 2008, Italian doctor Paolo Zamboni was ridiculed when he proposed a whole new approach to MS. He claimed that instead of treating nerve damage, doctors should be focused on blood vessels. He believed that MS was due to a narrowing of the veins in the neck. Zamboni’s theory gave hope to millions of MS sufferers, but many neurologists scoffed at the idea – including Vicki’s.
Vicki Robinson
He was very dismissive, just didn’t feel that it had anything to do with MS, and that was the end of the conversation.
Dr Maryanne Demasi
How did that make you feel?
Vicki Robinson
I was really angry, actually.
Dr Paul Thibault
The good news is that the flow on the right side is still very good.
Narration
So Vicki turned to Australian vein specialist Dr Paul Thibault, who says in his experience with MS patients, Zamboni’s theory has credibility.
Dr Paul Thibault
The veins have been known to be involved in Multiple Sclerosis since the disease was first described in the nineteenth century. But this fact has really been ignored by the neurologists in particular.
Narration
Dr Thibault encouraged Vicki to have the controversial procedure called ‘venoplasty’ to correct the narrowing in her neck veins. The results were virtually instantaneous.
Vicki Robinson
The first thing that I noticed was my eyesight – amazing, just incredible. From pre-procedure in the waiting bay, couldn't read the signs on the wall, to coming out and being placed in the same bay and wow, there they were. Everything clear as a bell.
This is my mobility scooter that I used to have to use to go out anywhere – shopping, any of those sorts of things, before I had the venoplasty. Happily sitting here gathering dust now.
Dr Maryanne Demasi
So your neurologist doesn’t know you’ve had a venoplasty done?
Vicki Robinson
No, no.
Dr Maryanne Demasi
So what does he attribute this miraculous improvement to?
Vicki Robinson
Oh, some patients for some reason just do better than others, and I just happened to be one of those, perhaps.
Narration
It has to be said that not all patients have had the same success as Vicki, and there’s a fifty per cent chance that her veins will narrow again. Dr Thibault agrees with Zamboni that MS is a vascular condition. But he also believes that narrowed veins are caused by a chronic infection, and like David Wheldon, his focus is on Chlamydia Pneumoniae.
Dr Paul Thibault
CPN is on my hit list because it is the bacteria that fits all the requirements. It is known to affect the lining of blood vessels and in particular, veins. It is known to involve the nervous system, is able to cause immune effects. So it fits all the features that we actually see in the symptomatology of MS.
Narration
If you want epidemiological proof that MS is caused by an infection, you only have to look at the isolated population on the Faroe Islands.
Dr Paul Thibault
Prior to World War Two, there was no instance of MS in those islands. In 1940 the islands were occupied by British troops, and by 1945 there was a small epidemic of MS in the islands.
Narration
From this it was postulated that British troops brought MS to the island, but if infection with Chlamydia Pneumoniae is so common, why doesn’t everyone develop MS?
Dr Paul Thibault
Some other factor, like it could be low vitamin D levels, or genetic predisposition, makes them develop the secondary or persistent form of the disease, which affects the neurological tissues and the veins. I don't know why the neurologists aren’t offering them at least Minocycline which has been shown in a number of studies to benefit MS.
Dr Maryanne Demasi
Why, why are neurologists turning their back on this?
Dr Paul Thibault
I think the neurologists have gone down this track for many years and they would have trouble admitting that they may have gone the wrong way. And therefore they continue on with the same line of thought.
Narration
For a neurologist’s perspective, I visited respected MS researcher Associate Professor Robert Heard.
Assoc Prof Robert Heard
We’d love to see more data about it but …
Narration
In a candid moment he did admit that Dr Thibault’s theory was plausible.
Assoc Prof Robert Heard
In an unguarded moment, maybe after a drink or two, a couple of neurologists might say to each other, ‘You know, it just has to be an infection, doesn’t it?’ And in fact I’ve had that exact conversation with well-known MS specialists. But we just can't put our finger on it.
Narration
But despite the anecdotal evidence, Dr Heard warns that responsible treatment is all about evidence-based medicine.
Assoc Prof Robert Heard
If we’re going to do experiments in patients, we’re going to use them as guinea-pigs, we need to have that clinical trial informed by some solid science.
Narration
But clinical trials to obtain solid science requires funding, and getting it is virtually impossible. Why haven’t the clinical trials been done?
Dr Paul Thibault
The problem is that the antibiotics used have been around for many, many years. They’re all off patent, they are inexpensive, and there is no profit in it.
Narration
So as the debate rages on, what hope is there for MS sufferers?
Dr Paul Thibault
We’re looking at treating the cause of the disease, and therefore, if we can get patients early enough, we could cure MS.
Narration
But it’s this sort of statement that worries neurologists.
Assoc Prof Robert Heard
I think people have used the C-word and talked about cures for as long as MS has existed. And I think to use the word ‘cure’ at this stage of our scientific understanding is highly irresponsible.
Narration
Dr Thibault has decided to put Vicki on antibiotics to see if she makes further progress. Like Vicki, David Wheldon knows that clinical trials will take time, and it’s time that MS patients can't afford.
Dr David Wheldon
The clinical trials are not there. It’s … that has to be said, it’s, um, and I wasn’t going to wait for them either, you know. I’d be a widower now if I was waiting for, for clinical trials. Sorry.
Narration
It may be too early to tell if we stand before a cure for MS, but if we do, these men will be remembered as the pioneers.
Neurologist
Gosford, NSW
David Wheldon
Microbiologist
Bedford, UK
Dr Paul Thibault
Phlebologist
Central Vein & Cosmetic Medical Centre
Broadmeadow, NSW
Multiple Sclerosis Australia
Chlamydia Pneumoniae – more info
Westmead Millenium Institute
Is it possible that Multiple Sclerosis can be cured? According to these medical mavericks, the answer is yes.
Dr Paul Thibault
This is a paradigm shift in the way we understand the disease.
Narration
They argue that an infection is what triggers the disease.
Dr David Wheldon
The immune system sort of knows it’s there but can't do much about it.
Dr Maryanne Demasi
Incredibly, the treatment has been right under our noses. Here, I explore an unpopular medical theory that has been flying under the radar until now.
Narration
At this home in London lives a man who believes he’s cured his wife of an incurable disease.
Dr David Wheldon
I don’t like using the word ‘cure’ because it’s sort of tempting providence, but I feel in my heart of hearts that the disease has gone.
Sarah Longlands
If it wasn’t for David I would be probably dead or curled up in a corner of a nursing home, useless to the world.
Dr David Wheldon
Well, meet the artist, Sarah.
Sarah Longlands
Hello.
Dr Maryanne Demasi
Hi Sarah, how are you doing?
Narration
Sarah, a talented artist, was diagnosed with MS in her twenties.
Sarah Longlands
My right arm started to go numb and I couldn't use it at all, it was just hanging in front of me.
Dr David Wheldon
Sarah was told that there was absolutely nothing that medicine could do for her. I, I was filled with fear. Here was a person I’d married – an alert, intelligent, bright, creative person, who, to be quite blunt, was, was losing her mind.
Narration
It’s widely accepted that MS is an auto-immune disease. The body’s immune system destroys the myelin sheath around nerve fibres. Patients develop lesions in the brain and spinal cord, and eventually lose their ability to think and move.
Dr Maryanne Demasi
So this is, this is essentially damage in the brain?
Dr David Wheldon
It’s damage, yes.
Narration
David, an expert in infectious diseases who used to treat MS patients, drew on all his experience to formulate a revolutionary theory. He believed that Sarah’s MS was triggered by an infection. The bacterium he honed in on was called Chlamydia Pneumoniae.
Dr David Wheldon
When one thinks of Chlamydia, one automatically thinks of venerally transmitted Chlamydia. Chlamydia Pneumoniae is a respiratory pathogen. It’s spread by droplet infection – coughing and sneezing.
Narration
Infection is so common that it’s likely you’ve been exposed by the age of twenty. The bacteria finds shelter inside blood vessels and nerves, causing low-grade infection over decades. Convinced that Sarah’s body was under attack from this bacterium, David worked tirelessly to find a solution. Together with a colleague in the US, he formulated a cocktail of antibiotics to eradicate this insidious bacterium.
Dr David Wheldon
It’s been shown that a single antibiotic doesn’t eradicate the organism, and these three antibiotics work together in a very specific way.
Dr Maryanne Demasi
How long does the treatment go for?
Dr David Wheldon
I think the treatment should be for a minimum of a year.
Dr Maryanne Demasi
A year?
Dr David Wheldon
Yes.
Dr Maryanne Demasi
That’s a long time on antibiotics.
Dr David Wheldon
It, it is a long time, but it’s a very, very difficult organism to eradicate.
Narration
Sarah’s neurologist insisted she would never regain her function. But David showed me the lesions on Sarah’s MRI scans before and after treatment. The results were nothing short of miraculous.
Dr David Wheldon
I’ve never seen anything like it before. Some lesions have quite literally vanished. Sarah had been numb from the waist down and literally couldn't feel her legs. Sensation came back fairly quickly, in, in, in five or six months.
Dr Maryanne Demasi
Did this shock the neurologists?
Dr David Wheldon
Ah, the neurologist wouldn't see the scan. He says, he says, ‘I’m not looking.’
Dr Maryanne Demasi
So did this, did this surprise you?
Dr David Wheldon
It absolutely shocked me. I think very few people know about the possibility of a chlamydial causation of MS, and therefore very few people will understand the possibility of treatment. The ignorance about this organism is immense.
Narration
The problem is, this bacterium is notoriously difficult to detect in patients. Only a few labs in the world have the expertise.
Dr David Wheldon
Technique is a limiting factor, and to say you don’t isolate something as difficult as this is, like I say, if you search a haystack for ten minutes and say, ‘I see no needle’, really you’re not telling anyone very much.
Dr Maryanne Demasi
This kind of paradigm change in the way we understand and treat disease often causes dissention among the ranks. And this wouldn't be the first time that a radical theory was dismissed by mainstream medicine.
Narration
Australian scientists, Warren and Marshall, went to extraordinary lengths to prove that stomach ulcers were not caused by stress, but by a bacterial infection. Marshall took the ultimate leap of faith and infected himself with the bug.
Barry Marshall
I said to my wife, ‘I took the bacteria, I’ve got the illness.’ And she said, ‘You did what?’
Narration
Fortunately a simple course of antibiotics cured him. The pair won a Nobel Prize in 2005.
Similarly in 2008, Italian doctor Paolo Zamboni was ridiculed when he proposed a whole new approach to MS. He claimed that instead of treating nerve damage, doctors should be focused on blood vessels. He believed that MS was due to a narrowing of the veins in the neck. Zamboni’s theory gave hope to millions of MS sufferers, but many neurologists scoffed at the idea – including Vicki’s.
Vicki Robinson
He was very dismissive, just didn’t feel that it had anything to do with MS, and that was the end of the conversation.
Dr Maryanne Demasi
How did that make you feel?
Vicki Robinson
I was really angry, actually.
Dr Paul Thibault
The good news is that the flow on the right side is still very good.
Narration
So Vicki turned to Australian vein specialist Dr Paul Thibault, who says in his experience with MS patients, Zamboni’s theory has credibility.
Dr Paul Thibault
The veins have been known to be involved in Multiple Sclerosis since the disease was first described in the nineteenth century. But this fact has really been ignored by the neurologists in particular.
Narration
Dr Thibault encouraged Vicki to have the controversial procedure called ‘venoplasty’ to correct the narrowing in her neck veins. The results were virtually instantaneous.
Vicki Robinson
The first thing that I noticed was my eyesight – amazing, just incredible. From pre-procedure in the waiting bay, couldn't read the signs on the wall, to coming out and being placed in the same bay and wow, there they were. Everything clear as a bell.
This is my mobility scooter that I used to have to use to go out anywhere – shopping, any of those sorts of things, before I had the venoplasty. Happily sitting here gathering dust now.
Dr Maryanne Demasi
So your neurologist doesn’t know you’ve had a venoplasty done?
Vicki Robinson
No, no.
Dr Maryanne Demasi
So what does he attribute this miraculous improvement to?
Vicki Robinson
Oh, some patients for some reason just do better than others, and I just happened to be one of those, perhaps.
Narration
It has to be said that not all patients have had the same success as Vicki, and there’s a fifty per cent chance that her veins will narrow again. Dr Thibault agrees with Zamboni that MS is a vascular condition. But he also believes that narrowed veins are caused by a chronic infection, and like David Wheldon, his focus is on Chlamydia Pneumoniae.
Dr Paul Thibault
CPN is on my hit list because it is the bacteria that fits all the requirements. It is known to affect the lining of blood vessels and in particular, veins. It is known to involve the nervous system, is able to cause immune effects. So it fits all the features that we actually see in the symptomatology of MS.
Narration
If you want epidemiological proof that MS is caused by an infection, you only have to look at the isolated population on the Faroe Islands.
Dr Paul Thibault
Prior to World War Two, there was no instance of MS in those islands. In 1940 the islands were occupied by British troops, and by 1945 there was a small epidemic of MS in the islands.
Narration
From this it was postulated that British troops brought MS to the island, but if infection with Chlamydia Pneumoniae is so common, why doesn’t everyone develop MS?
Dr Paul Thibault
Some other factor, like it could be low vitamin D levels, or genetic predisposition, makes them develop the secondary or persistent form of the disease, which affects the neurological tissues and the veins. I don't know why the neurologists aren’t offering them at least Minocycline which has been shown in a number of studies to benefit MS.
Dr Maryanne Demasi
Why, why are neurologists turning their back on this?
Dr Paul Thibault
I think the neurologists have gone down this track for many years and they would have trouble admitting that they may have gone the wrong way. And therefore they continue on with the same line of thought.
Narration
For a neurologist’s perspective, I visited respected MS researcher Associate Professor Robert Heard.
Assoc Prof Robert Heard
We’d love to see more data about it but …
Narration
In a candid moment he did admit that Dr Thibault’s theory was plausible.
Assoc Prof Robert Heard
In an unguarded moment, maybe after a drink or two, a couple of neurologists might say to each other, ‘You know, it just has to be an infection, doesn’t it?’ And in fact I’ve had that exact conversation with well-known MS specialists. But we just can't put our finger on it.
Narration
But despite the anecdotal evidence, Dr Heard warns that responsible treatment is all about evidence-based medicine.
Assoc Prof Robert Heard
If we’re going to do experiments in patients, we’re going to use them as guinea-pigs, we need to have that clinical trial informed by some solid science.
Narration
But clinical trials to obtain solid science requires funding, and getting it is virtually impossible. Why haven’t the clinical trials been done?
Dr Paul Thibault
The problem is that the antibiotics used have been around for many, many years. They’re all off patent, they are inexpensive, and there is no profit in it.
Narration
So as the debate rages on, what hope is there for MS sufferers?
Dr Paul Thibault
We’re looking at treating the cause of the disease, and therefore, if we can get patients early enough, we could cure MS.
Narration
But it’s this sort of statement that worries neurologists.
Assoc Prof Robert Heard
I think people have used the C-word and talked about cures for as long as MS has existed. And I think to use the word ‘cure’ at this stage of our scientific understanding is highly irresponsible.
Narration
Dr Thibault has decided to put Vicki on antibiotics to see if she makes further progress. Like Vicki, David Wheldon knows that clinical trials will take time, and it’s time that MS patients can't afford.
Dr David Wheldon
The clinical trials are not there. It’s … that has to be said, it’s, um, and I wasn’t going to wait for them either, you know. I’d be a widower now if I was waiting for, for clinical trials. Sorry.
Narration
It may be too early to tell if we stand before a cure for MS, but if we do, these men will be remembered as the pioneers.
Topics: Health
- Reporter: Dr Maryanne Demasi
- Producer: Dr Maryanne Demasi
- Researcher: Dr Maryanne Demasi
- Camera: Kevin May
Greg Heap - Sound: Stephen Ravich
Adam Toole - Editor: Andrew Glover
Graphics
Toby Goulding
TimeLapse Vision Inc
Story Contacts
Ass Prof Robert HeardNeurologist
Gosford, NSW
David Wheldon
Microbiologist
Bedford, UK
Dr Paul Thibault
Phlebologist
Central Vein & Cosmetic Medical Centre
Broadmeadow, NSW
Related Info
Multiple Sclerosis Australia
Chlamydia Pneumoniae – more info
Westmead Millenium Institute
^ top
YOUR COMMENTS
>> Add a Comment
30 Aug 2012 7:50:46am
-
28 Aug 2012 12:49:29pm
-
My name is Kim Worthington and i have had M.S. For
about 21yrs now and for myself i would be open to being a test project i
am open to drs trying anything on me, anything that could possibly help
me and others! I can still walk but its not easy and is very shaky and
painfull..
>> Reply
>> Reply
Moderator: Sorry but we can't publish personal details like phone numbers and email addresses on our website.
28 Aug 2012 10:50:28am
-
I was diagnosed with MS ten years ago i have always
thought an infection is causing my symptons.I am surpose to start my
fith and final treatment for MS and am willing to try your treatment for
Clamydia Pneumonia.Due to surviere side effects non off the treatments
worked for me.Im willing to prove Dr David Wheldons treatment will work
for me.Please.Regards Debra Jones
>> Reply
>> Reply
28 Aug 2012 10:38:41am
-
I was diagnosed with MS ten years ago.After using
Avonex,Copaxone,Betaferon and Tysabri im now surpose to start
Gilenya.Due to side effects my body doesnt tollerate these treatments.I
have always told my husband that i must have an infection that causes
all my symptons.
>> Reply
>> Reply
28 Aug 2012 4:59:26am
-
Interesting case but let's see this hypothesis
tested in the lab. Until it's been proven via multiple clinical trials
it's important not to get the patient's hopes up.
>> Reply
>> Reply
28 Aug 2012 4:03:37pm
-
What a stupid thing to say, don't get patients hopes up.
We have no hope. Forget about the Lab, am sure many MS people are willing to be a test case.
Give me the Anti Binotics I'll test them. I'm desperate.
Please give me a go, regards Janie.
>> Reply
We have no hope. Forget about the Lab, am sure many MS people are willing to be a test case.
Give me the Anti Binotics I'll test them. I'm desperate.
Please give me a go, regards Janie.
>> Reply
28 Aug 2012 6:18:41pm
-
Jennifer, if you're a sufferer (of MS or other
diseases) there's no time to wait for clinical trials that may never
happen. Sometimes a "clinical trial" of one, if researched well, with
good base-lines, can yield measurable results.
>> Reply
>> Reply
28 Aug 2012 10:57:51pm
-
Jennifer,
Many people with MS have expressed their thanks & gratitude for the information presented on this Catalyst episode because it offers HOPE. Your comments suggest that you prefer to take that hope away. Why would you want to do that?
Perhaps you missed the interview with Dr David Wheldon when he explained...."I'd be a widower now if I was waiting for clinical trials."
Here are some words about 'Hope' that might be valuable to you someday;
"Hope" is the thing with feathers -
That perches in the soul -
And sings the tune without the words -
And never stops - at all -
(Emily Dickinson 1830 - 1886)
>> Reply
Many people with MS have expressed their thanks & gratitude for the information presented on this Catalyst episode because it offers HOPE. Your comments suggest that you prefer to take that hope away. Why would you want to do that?
Perhaps you missed the interview with Dr David Wheldon when he explained...."I'd be a widower now if I was waiting for clinical trials."
Here are some words about 'Hope' that might be valuable to you someday;
"Hope" is the thing with feathers -
That perches in the soul -
And sings the tune without the words -
And never stops - at all -
(Emily Dickinson 1830 - 1886)
>> Reply
27 Aug 2012 4:36:17pm
-
re Low Dose Naltrexone (LDN) Research:
You'll find a collection of 51 LDN detailed case studies, self-reported by patients achieving success, in my free ebook research publication hosted by the LDN Research Trust in the UK. Included are interviews with 19 health professionals and all the research/clinicial trial links to 2010.
(1) 'Those Who Suffer Much, Know Much', 5th edition, 2010
http://www.ldnresearchtrustfiles.co.uk/docs/2010.pdf
Another publication that may be of interest is the LDN Research Trust's free ebook containing 201 patient testimonies:
(2) 201 Reasons Why... You Should Know About LDN, 2010
http://www.ldnresearchtrustfiles.co.uk/docs/ebook.pdf
Research & Clinical trials since 2010:
(3) 'Single cohort study of the effect of low dose naltrexone on the evolution of immunological, virological and clinical state of HIV+ adults in Mali'
http://www.academicjournals.org/JAHR/abstracts/abstracts/abstracts2011/October/Traore%20et%20al%20(1).htm
(4) 'Impact of low dose naltrexone (LDN) on antiretroviral therapy (ART) treated HIV+ adults in Mali: A single blind randomized clinical trial'
http://www.academicjournals.org/JAHR/abstracts/abstracts/abstracts2011/October/Traore%20et%20al%20(2).htm
(5) 'Low-dose naltrexone targets the opioid growth factor-opioid growth factor receptor pathway to inhibit cell proliferation: mechanistic evidence from a tissue culture model'
http://ebm.rsmjournals.com/content/236/9/1036
(6) 'Opioid growth factor improves clinical benefit and survival in patients with advanced pancreatic cancer'
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2947031
(7) 'Low Dose Naltrexone: Harnessing the Body's Own Chemistry to Treat Human Ovarian Cancer'
http://www.sciencedaily.com/releases/2011/07/110712143012.htm
(8) 'Low-Dose Naltrexone (LDN): Tricking the Body to Heal Itself'
http://www.sciencedaily.com/releases/2011/09/110902133047.htm
###
Pharmaceutical companies cannot afford to spend millions on clinical trials for out-of-patent drugs, but the solution is really very simple and could be implemented within 6 months if the govt supported it as proposed.
That is, provide capacity for patients to self-report their health outcomes in structured ways within their own ehealth records, such that patients self-reported outcomes can become an aspect of evidence, that combined with their other medical information provides all the evidence needed for efficacy and safety of older drugs, without the need for a clinical trial.
This is the crux of a recent submission to the current Strategic Review into National Health and Medical Research (Submission No. 296 - http://mckeonreview.org.au/sub/296_Cris_Kerr_Case_Health.pdf) as well as previous submissions on Australia's new ehealth system.
>> Reply
You'll find a collection of 51 LDN detailed case studies, self-reported by patients achieving success, in my free ebook research publication hosted by the LDN Research Trust in the UK. Included are interviews with 19 health professionals and all the research/clinicial trial links to 2010.
(1) 'Those Who Suffer Much, Know Much', 5th edition, 2010
http://www.ldnresearchtrustfiles.co.uk/docs/2010.pdf
Another publication that may be of interest is the LDN Research Trust's free ebook containing 201 patient testimonies:
(2) 201 Reasons Why... You Should Know About LDN, 2010
http://www.ldnresearchtrustfiles.co.uk/docs/ebook.pdf
Research & Clinical trials since 2010:
(3) 'Single cohort study of the effect of low dose naltrexone on the evolution of immunological, virological and clinical state of HIV+ adults in Mali'
http://www.academicjournals.org/JAHR/abstracts/abstracts/abstracts2011/October/Traore%20et%20al%20(1).htm
(4) 'Impact of low dose naltrexone (LDN) on antiretroviral therapy (ART) treated HIV+ adults in Mali: A single blind randomized clinical trial'
http://www.academicjournals.org/JAHR/abstracts/abstracts/abstracts2011/October/Traore%20et%20al%20(2).htm
(5) 'Low-dose naltrexone targets the opioid growth factor-opioid growth factor receptor pathway to inhibit cell proliferation: mechanistic evidence from a tissue culture model'
http://ebm.rsmjournals.com/content/236/9/1036
(6) 'Opioid growth factor improves clinical benefit and survival in patients with advanced pancreatic cancer'
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2947031
(7) 'Low Dose Naltrexone: Harnessing the Body's Own Chemistry to Treat Human Ovarian Cancer'
http://www.sciencedaily.com/releases/2011/07/110712143012.htm
(8) 'Low-Dose Naltrexone (LDN): Tricking the Body to Heal Itself'
http://www.sciencedaily.com/releases/2011/09/110902133047.htm
###
Pharmaceutical companies cannot afford to spend millions on clinical trials for out-of-patent drugs, but the solution is really very simple and could be implemented within 6 months if the govt supported it as proposed.
That is, provide capacity for patients to self-report their health outcomes in structured ways within their own ehealth records, such that patients self-reported outcomes can become an aspect of evidence, that combined with their other medical information provides all the evidence needed for efficacy and safety of older drugs, without the need for a clinical trial.
This is the crux of a recent submission to the current Strategic Review into National Health and Medical Research (Submission No. 296 - http://mckeonreview.org.au/sub/296_Cris_Kerr_Case_Health.pdf) as well as previous submissions on Australia's new ehealth system.
>> Reply
26 Aug 2012 7:54:58pm
-
i think its great news and makes allot of sense and
will be getting some antibotics and as for the beta interferon or avonex
and the other injections i wouldnt be wasting my time thats for sure
the amount of pain associated with all the after effects of the
injection which is worse than symptoms from disease ive had the disease
since i was 14 and got sick when i went on a holiday so thank you for
making this discovery and sharing it with us so at least we can try
something else
>> Reply
>> Reply
26 Aug 2012 6:08:10pm
-
-
I have tried numerous medications, the latest
fingolimod which was absolutely horrendous, I would be more than willing
to try the antibiotic approach. Please contact me if I can be of any
help.
>> Reply
>> Reply
26 Aug 2012 7:48:34am
-
Professor Tom Borody published a medical paper in
2011 about complete resolution of symptoms of multiple sclerosis up to
15 years as at the time of the paper in three patients who were being
treated for constipation by fecal microbiota transplant.
http://www.fecalmicrobiotatransplant.com
>> Reply
>> Reply
26 Aug 2012 4:32:12am
-
Thank you to all involved in this Catalyst story.
For the sceptics, including the MS Societies of the world, who claim that there is no research evidence to implicate C. pneumoniae in MS, I provide for you the abstract of the original research of Sriram and Stratton et al. (1999):
http://www.ncbi.nlm.nih.gov/pubmed/10401775
The following excerpt surely contains information that any transparent and ethically sound organisation could not ignore.
"Our identification of Chlamydia pneumoniae in the cerebrospinal fluid (CSF) of a patient with multiple sclerosis (MS) led us to examine the incidence of this organism in the CSF from 17 patients with relapsing-remitting MS, 20 patients with progressive MS, and 27 patients with other neurological diseases (OND)." ... "C. pneumoniae was isolated by tissue culture from the CSF in 64% of MS patients versus 11% of the controls. PCR assays demonstrated the presence of C. pneumoniae major outer membrane protein (MOMP) gene in the CSF of 97% of MS patients and 18% of the controls. Finally, 86% of the MS patients had increased CSF antibodies to C. pneumoniae EB antigens, as demonstrated by enzyme-linked immunoadsorbent assay adsorbance values that were 3 standard deviations greater than those seen in the controls."
How, I ask, can this evidence be ignored? What is the harm in investigating it further? Perhaps only multi-billion dollar drug company losses. The antibiotics I take for C. pneumoniae/MS cost just over $1000 per year. Had I been led up the garden-path by neurologists, Australian Taxpayers would be helping pay a pharmaceutical company somewhere between $25,000 - $48,000 per year for my supply of a patented MS drug. Make no mistake, corporate greed is deeply entrenched within the resistance to investigate C. pneumoniae.
Research evidence exists. What doesn't exist are the overly revered 'double-blind randomised controlled trials'. They don't exist because with 2.5 million people affected by MS worldwide, each year drug companies could bring in between $60 - 130 billion for the worldwide supply of patented MS drugs. Even if only half that sum is profit, can we not now see why there is resistance to a hypothesis that a $1000 ($2.5 billion globally) per year treatment might be the long searched for answer?
A commonly cited study that did investigate antibiotic use in MS used a totally ineffective protocol for chronic C. pneumoniae infection - it therefore bears no meaning.
Perhaps as a starting point we could stop testing MS patients cerebrospinal fluid only for oligoclonal bands and general protein levels, and add in C. pneumoniae. No one's profits would be at risk there, and we'd start to build data on infection rates.
Thank you again to all involved in the production of this story. I look forward to follow-ups.
>> Reply
For the sceptics, including the MS Societies of the world, who claim that there is no research evidence to implicate C. pneumoniae in MS, I provide for you the abstract of the original research of Sriram and Stratton et al. (1999):
http://www.ncbi.nlm.nih.gov/pubmed/10401775
The following excerpt surely contains information that any transparent and ethically sound organisation could not ignore.
"Our identification of Chlamydia pneumoniae in the cerebrospinal fluid (CSF) of a patient with multiple sclerosis (MS) led us to examine the incidence of this organism in the CSF from 17 patients with relapsing-remitting MS, 20 patients with progressive MS, and 27 patients with other neurological diseases (OND)." ... "C. pneumoniae was isolated by tissue culture from the CSF in 64% of MS patients versus 11% of the controls. PCR assays demonstrated the presence of C. pneumoniae major outer membrane protein (MOMP) gene in the CSF of 97% of MS patients and 18% of the controls. Finally, 86% of the MS patients had increased CSF antibodies to C. pneumoniae EB antigens, as demonstrated by enzyme-linked immunoadsorbent assay adsorbance values that were 3 standard deviations greater than those seen in the controls."
How, I ask, can this evidence be ignored? What is the harm in investigating it further? Perhaps only multi-billion dollar drug company losses. The antibiotics I take for C. pneumoniae/MS cost just over $1000 per year. Had I been led up the garden-path by neurologists, Australian Taxpayers would be helping pay a pharmaceutical company somewhere between $25,000 - $48,000 per year for my supply of a patented MS drug. Make no mistake, corporate greed is deeply entrenched within the resistance to investigate C. pneumoniae.
Research evidence exists. What doesn't exist are the overly revered 'double-blind randomised controlled trials'. They don't exist because with 2.5 million people affected by MS worldwide, each year drug companies could bring in between $60 - 130 billion for the worldwide supply of patented MS drugs. Even if only half that sum is profit, can we not now see why there is resistance to a hypothesis that a $1000 ($2.5 billion globally) per year treatment might be the long searched for answer?
A commonly cited study that did investigate antibiotic use in MS used a totally ineffective protocol for chronic C. pneumoniae infection - it therefore bears no meaning.
Perhaps as a starting point we could stop testing MS patients cerebrospinal fluid only for oligoclonal bands and general protein levels, and add in C. pneumoniae. No one's profits would be at risk there, and we'd start to build data on infection rates.
Thank you again to all involved in the production of this story. I look forward to follow-ups.
>> Reply
25 Aug 2012 7:18:15pm
-
Regarding diet and MS, you should also look at
/www.terrywahls.com which is the site for a medical practitioner who was
in a wheelchair with MS but through diet changes has recovered and her
dietary regime focuses less on saturated fat as the culprit and rather
follows a Paleo diet.
>> Reply
>> Reply
25 Aug 2012 10:31:30am
-
Bravo,
Thanks for coming forward with this wonderful video. My wife has had MS since 1980 and she had Pneumonia prior to the onset of MS. She constantly fights infections with the medications mentioned with her urologist and gynecologist. She is unable to move anything but her neck and she has had CCSVI twice with little to no improvement. I hope she could benefit from this cocktail of medication and now the search for a doctor to administer the recepie.
>> Reply
Thanks for coming forward with this wonderful video. My wife has had MS since 1980 and she had Pneumonia prior to the onset of MS. She constantly fights infections with the medications mentioned with her urologist and gynecologist. She is unable to move anything but her neck and she has had CCSVI twice with little to no improvement. I hope she could benefit from this cocktail of medication and now the search for a doctor to administer the recepie.
>> Reply
25 Aug 2012 9:37:25am
-
The Catalyst program was remiss in the way it
handled this alleged cure. This was an experiment of one with no
statistical validity at all. The response attributed to antibiotics
could be regarded as a case for further investigation but to give MS
sufferers the impression that here was a new you beaut cure was
reprehensible. Antibiotics and antivirals of many types have all been
tried from time to time. Antibiotics as well as killing unwanted
organisms, have effects in their own right on body tissues, who knows
how this may influence the disease. We should note also that MS is more
prevalent in temperate climates rather than tropical, suggesting that
vitamin D has an influence. The incidence is less in less developed
countries where the diet is different particularly in relation to fats,
it is less in Japan where the diet is much more fish related. In the
face of known facts, to suggest that antibiotic treatment is an answer
to this multifactorial disease is just too simplistic.
>> Reply
>> Reply
27 Aug 2012 3:22:07pm
-
Hi Peter,
It appears that you've totally missed the most important message of the presentation...so here is a polite reminder of that message in the words of Dr David Wheldon;
"The clinical trials are not there...that has to be said...and I wasn’t going to wait for them either, you know. I’d be a widower now if I was waiting for clinical trials. Sorry."
Some of the words in the 'Hippocratic Oath' might also be helpful to you in the future;
"I will remember that there is art to medicine as well as science, and that warmth, sympathy, and understanding may outweigh the surgeon's knife or the chemist's drug."
" I will remember that I do not treat a fever chart, a cancerous growth, but a sick human being, whose illness may affect the person's family and economic stability. My responsibility includes these related problems, if I am to care adequately for the sick."
>> Reply
It appears that you've totally missed the most important message of the presentation...so here is a polite reminder of that message in the words of Dr David Wheldon;
"The clinical trials are not there...that has to be said...and I wasn’t going to wait for them either, you know. I’d be a widower now if I was waiting for clinical trials. Sorry."
Some of the words in the 'Hippocratic Oath' might also be helpful to you in the future;
"I will remember that there is art to medicine as well as science, and that warmth, sympathy, and understanding may outweigh the surgeon's knife or the chemist's drug."
" I will remember that I do not treat a fever chart, a cancerous growth, but a sick human being, whose illness may affect the person's family and economic stability. My responsibility includes these related problems, if I am to care adequately for the sick."
>> Reply
28 Aug 2012 11:20:44pm
-
It appears to me that Catalyst gave accurate
information that was give to them by Dr. Wheldon. I did not see
anything but possibility. Its sometimes the obvious that is the simple
answer. Not being open inhibits are growth forward
>> Reply
>> Reply
24 Aug 2012 7:12:36pm
-
On 29 feb 1992 I gave birth to my third child. The
next day I was running a fever. I had developed an infection somewhere.
Three months later I began having my first early sensory symptoms but it
took doctors until 2004 to diagnose MS. I knew I had the disease when
my first symptoms started. I will never know what triggered my fever
after the birth of my youngest child. I felt hot but didn't feel sick.
Could it be that I had the bacteria talked about here. There is no
history of MS anywhere in my family. I have benign MS and I only
experience sensory symptoms. My lesions are deep in my brain and none
on my spine. My only battle is with fatigue and heat fatigue. I believe
this finding has credibility given my experience.
>> Reply
>> Reply
24 Aug 2012 6:41:46pm
-
Minocycline is a common, well understood and tolerated, inexpensive and out-of-patent antibiotic.
Read on...
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3127230/?tool=pmcentrez
http://www.ncbi.nlm.nih.gov/pubmed/21565409
>> Reply
Read on...
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3127230/?tool=pmcentrez
http://www.ncbi.nlm.nih.gov/pubmed/21565409
>> Reply
24 Aug 2012 6:31:59pm
-
Here is the comment from MSRA about the Catalyst story:
http://www.msra.org.au/statement-research-theories-multiple-sclerosis
>> Reply
http://www.msra.org.au/statement-research-theories-multiple-sclerosis
>> Reply
24 Aug 2012 6:29:15pm
-
Worth looking at:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2924524/
http://www.springerlink.com/content/gh5u4k7118274q46/
>> Reply
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2924524/
http://www.springerlink.com/content/gh5u4k7118274q46/
>> Reply
24 Aug 2012 5:44:51pm
-
It was heartwarming to hear Dr David Wheldon express his feelings about his wife & the motives for his research;
"Sarah was told that there was absolutely nothing that medicine could do for her. I was filled with fear. Here was a person I'd married, an alert, intelligent, bright, creative person..."
I also enjoyed hearing Sarah express her feelings about her husband;
"If it wasn't for David, I would probably be dead or curled up in a nursing home, useless to the world."
Just goes to show how empathy & love can really bring amazing medical results with lots of happiness.
Thanks for your presentation Catalyst.
>> Reply
"Sarah was told that there was absolutely nothing that medicine could do for her. I was filled with fear. Here was a person I'd married, an alert, intelligent, bright, creative person..."
I also enjoyed hearing Sarah express her feelings about her husband;
"If it wasn't for David, I would probably be dead or curled up in a nursing home, useless to the world."
Just goes to show how empathy & love can really bring amazing medical results with lots of happiness.
Thanks for your presentation Catalyst.
>> Reply
24 Aug 2012 5:22:18pm
-
Hey I've been injecting for 11 years with Beta
Ferron as I was diagnosed in early 2oo1. I am sick of inje4cting and am
so interested in other options. But I am sceptical as I don't want t6o
go backwards, cause I am in a good place now, in my life...If I can help
please contact me. Cheers to all out there. There is hope
>> Reply
>> Reply
24 Aug 2012 4:43:56pm
-
-
Your MS story was particularly interesting. Medical
professionals have long been confusing MS and Lyme disease, which share
many symptoms. Now there is the suggestion that, like Lyme disease, MS
may result from bacterial infection. Would be great to see more research
on this.
>> Reply
>> Reply
-
-
24 Aug 2012 2:59:15pm
-
I was diagnosed with MS last week and start
treatment tomorrow and this information makes a lot of sense to me. I
have a long history of respiratory problems and severe vitamin d
deficiency. But at the moment I don't see any choice other than to trust
my neurologist and take Gilenya.
>> Reply
>> Reply
24 Aug 2012 2:25:42pm
-
Could this MS infection theory also apply to
sproradic MND for which the cause remains unknown? A very fit and
generally healthy friend, other than for bronchiectasis (lung disease),
experienced a couple of years of bad chest infections leading up to
developing MND. She also had pneumonia early in life. She was found to
be low in Vitamin D also. She passed away within 18 months aged 56. I
hope they pursue this infection/antibiotic theory with some clinical
trials as there is too much at stake to not properly investigate
infection as a possible trigger/cause in relation to MS...and possibly
MND too?
>> Reply
>> Reply
25 Aug 2012 9:43:43pm
-
Dear Marion, my mother has been diagnosed with MS
back in 1995. However we recently heard of this story on abc so I
started researching again and came across something called "Chlamydia
Pneumoniae" a respiratory pathogen which is spread by droplet infection
eg: coughing and sneezing. Anyway this can also cause another illness
"GUILLAN-BARRE SYNDROME" (GBS), I was reading your comment above about
your friend which I am very sorry to hear about his/her passin. and it
sounds quite familiar to one of the subtypes of GBS. Just use Wikipedia
and maybe compare your friend to the information as MND PLUS pneumonia
PLUS you said started as an infection sound so familiar to this specific
illness. Hope this helps and I send my condolences.
>> Reply
>> Reply
28 Aug 2012 11:10:01am
-
Marion, thanks for your post. My Dad has recently
been diagnosed with MND and I'm off to see his doctor this Friday to
discuss Dr David Wheldon findings regarding bacterial cause & effect
of diet. I know I'm probably "clutching at straws" but current
neurologists are not offering anything other than his eventual death.
Are you able to share any findings you come across. Love to hear from
you.
>> Reply
>> Reply
24 Aug 2012 2:19:26pm
-
Nick,
All the info you need about what to take is summarised right here:
http://www.davidwheldon.co.uk/ms-treatment.pdf
For more detail (a complete online book in fact) look here:
http://www.davidwheldon.co.uk/ms-treatment.html
A great website put together mostly by patients using the treatment:
http://www.cpnhelp.org/home
Another recommendation by an Australian professor (George Jelinek, who himself has MS) is a very low fat diet:
http://www.overcomingmultiplesclerosis.org/
This diet has worked for hundreds of people (a study was just published in a scientific journal by George himself).
Lastly, naltrexone taken in low dosages (LDN) helps many people recover:
http://www.lowdosenaltrexone.org/
Rory,
Yes, metronidazole is very strong. Dosage is pulsed (5 days every 3 weeks) rather than constant, to minimise side effects.
I have just come down with MS myself and the above 3 strategies (diet, antibiotics, LDN) give us a very VERY good chance of beating the disease. Mainstream medicine offers little, especially for aggressive forms.
All 3 strategies are researched and supported by eminent scientists who have vested interests in halting the disease. They are not 'snake oil' treatments (although you will find plenty of those on the internet too).
Currently I'm on the diet and LDN. Depending on what happens I will be starting antibiotics very soon.
MS is being beaten every day. There is real hope for a normal life for everyone with MS. Read all the above info and it will be clear.
Pete
>> Reply
All the info you need about what to take is summarised right here:
http://www.davidwheldon.co.uk/ms-treatment.pdf
For more detail (a complete online book in fact) look here:
http://www.davidwheldon.co.uk/ms-treatment.html
A great website put together mostly by patients using the treatment:
http://www.cpnhelp.org/home
Another recommendation by an Australian professor (George Jelinek, who himself has MS) is a very low fat diet:
http://www.overcomingmultiplesclerosis.org/
This diet has worked for hundreds of people (a study was just published in a scientific journal by George himself).
Lastly, naltrexone taken in low dosages (LDN) helps many people recover:
http://www.lowdosenaltrexone.org/
Rory,
Yes, metronidazole is very strong. Dosage is pulsed (5 days every 3 weeks) rather than constant, to minimise side effects.
I have just come down with MS myself and the above 3 strategies (diet, antibiotics, LDN) give us a very VERY good chance of beating the disease. Mainstream medicine offers little, especially for aggressive forms.
All 3 strategies are researched and supported by eminent scientists who have vested interests in halting the disease. They are not 'snake oil' treatments (although you will find plenty of those on the internet too).
Currently I'm on the diet and LDN. Depending on what happens I will be starting antibiotics very soon.
MS is being beaten every day. There is real hope for a normal life for everyone with MS. Read all the above info and it will be clear.
Pete
>> Reply
25 Aug 2012 1:26:28pm
-
re Low Dose Naltrexone (LDN) Research:
You'll find a collection of 51 LDN detailed case studies, self-reported by patients achieving success, in my free ebook research publication hosted by the LDN Research Trust in the UK. Included are interviews with 19 health professionals and all the research/clinicial trial links to 2010.
(1) 'Those Who Suffer Much, Know Much', 5th edition, 2010
http://www.ldnresearchtrustfiles.co.uk/docs/2010.pdf
Another publication that may be of interest is the LDN Research Trust's free ebook containing 201 patient testimonies:
(2) 201 Reasons Why... You Should Know About LDN, 2010
http://www.ldnresearchtrustfiles.co.uk/docs/ebook.pdf
Research & Clinical trials since 2010:
(3) 'Single cohort study of the effect of low dose naltrexone on the evolution of immunological, virological and clinical state of HIV+ adults in Mali'
http://www.academicjournals.org/JAHR/abstracts/abstracts/abstracts2011/October/Traore%20et%20al%20(1).htm
(4) 'Impact of low dose naltrexone (LDN) on antiretroviral therapy (ART) treated HIV+ adults in Mali: A single blind randomized clinical trial'
http://www.academicjournals.org/JAHR/abstracts/abstracts/abstracts2011/October/Traore%20et%20al%20(2).htm
(5) ‘Low-dose naltrexone targets the opioid growth factor-opioid growth factor receptor pathway to inhibit cell proliferation: mechanistic evidence from a tissue culture model’
http://ebm.rsmjournals.com/content/236/9/1036
(6) ‘Opioid growth factor improves clinical benefit and survival in patients with advanced pancreatic cancer'
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2947031
(7) ‘Low Dose Naltrexone: Harnessing the Body's Own Chemistry to Treat Human Ovarian Cancer’
http://www.sciencedaily.com/releases/2011/07/110712143012.htm
(8) ‘Low-Dose Naltrexone (LDN): Tricking the Body to Heal Itself’
http://www.sciencedaily.com/releases/2011/09/110902133047.htm
###
Pharmaceutical companies cannot afford to spend millions on clinical trials for out-of-patent drugs, but the solution is really very simple and could be implemented within 6 months if the govt supported it as proposed.
That is, provide capacity for patients to self-report their health outcomes in structured ways within their own ehealth records, such that patients self-reported outcomes can become an aspect of evidence, that combined with their other medical information provides all the evidence needed for efficacy and safety of older drugs, without the need for a clinical trial.
This is the crux of my most recent submission to the current Strategic Review into National Health and Medical Research (Submission No. 296 - Cris Kerr, Case Health http://mckeonreview.org.au/sub/296_Cris_Kerr_Case_Health.pdf) as well as previous submissions on Australia's new ehealth system.
Cris Kerr
>> Reply
You'll find a collection of 51 LDN detailed case studies, self-reported by patients achieving success, in my free ebook research publication hosted by the LDN Research Trust in the UK. Included are interviews with 19 health professionals and all the research/clinicial trial links to 2010.
(1) 'Those Who Suffer Much, Know Much', 5th edition, 2010
http://www.ldnresearchtrustfiles.co.uk/docs/2010.pdf
Another publication that may be of interest is the LDN Research Trust's free ebook containing 201 patient testimonies:
(2) 201 Reasons Why... You Should Know About LDN, 2010
http://www.ldnresearchtrustfiles.co.uk/docs/ebook.pdf
Research & Clinical trials since 2010:
(3) 'Single cohort study of the effect of low dose naltrexone on the evolution of immunological, virological and clinical state of HIV+ adults in Mali'
http://www.academicjournals.org/JAHR/abstracts/abstracts/abstracts2011/October/Traore%20et%20al%20(1).htm
(4) 'Impact of low dose naltrexone (LDN) on antiretroviral therapy (ART) treated HIV+ adults in Mali: A single blind randomized clinical trial'
http://www.academicjournals.org/JAHR/abstracts/abstracts/abstracts2011/October/Traore%20et%20al%20(2).htm
(5) ‘Low-dose naltrexone targets the opioid growth factor-opioid growth factor receptor pathway to inhibit cell proliferation: mechanistic evidence from a tissue culture model’
http://ebm.rsmjournals.com/content/236/9/1036
(6) ‘Opioid growth factor improves clinical benefit and survival in patients with advanced pancreatic cancer'
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2947031
(7) ‘Low Dose Naltrexone: Harnessing the Body's Own Chemistry to Treat Human Ovarian Cancer’
http://www.sciencedaily.com/releases/2011/07/110712143012.htm
(8) ‘Low-Dose Naltrexone (LDN): Tricking the Body to Heal Itself’
http://www.sciencedaily.com/releases/2011/09/110902133047.htm
###
Pharmaceutical companies cannot afford to spend millions on clinical trials for out-of-patent drugs, but the solution is really very simple and could be implemented within 6 months if the govt supported it as proposed.
That is, provide capacity for patients to self-report their health outcomes in structured ways within their own ehealth records, such that patients self-reported outcomes can become an aspect of evidence, that combined with their other medical information provides all the evidence needed for efficacy and safety of older drugs, without the need for a clinical trial.
This is the crux of my most recent submission to the current Strategic Review into National Health and Medical Research (Submission No. 296 - Cris Kerr, Case Health http://mckeonreview.org.au/sub/296_Cris_Kerr_Case_Health.pdf) as well as previous submissions on Australia's new ehealth system.
Cris Kerr
>> Reply
27 Aug 2012 7:36:25am
-
re Low Dose Naltrexone (LDN) Research:
You'll find a collection of 51 LDN detailed case studies, self-reported by patients achieving success, in my free ebook
research publication hosted by the LDN Research Trust in the UK. Included are interviews with 19 health professionals
and all the research/clinicial trial links to 2010.
(1) 'Those Who Suffer Much, Know Much', 5th edition, 2010
http://www.ldnresearchtrustfiles.co.uk/docs/2010.pdf
Another publication that may be of interest is the LDN Research Trust's free ebook containing 201 patient testimonies:
(2) 201 Reasons Why... You Should Know About LDN, 2010
http://www.ldnresearchtrustfiles.co.uk/docs/ebook.pdf
Research & Clinical trials since 2010:
(3) 'Single cohort study of the effect of low dose naltrexone on the evolution of immunological, virological and
clinical state of HIV+ adults in Mali'
http://www.academicjournals.org/JAHR/abstracts/abstracts/abstracts2011/October/Traore%20et%20al%20(1).htm
(4) 'Impact of low dose naltrexone (LDN) on antiretroviral therapy (ART) treated HIV+ adults in Mali: A single blind
randomized clinical trial'
http://www.academicjournals.org/JAHR/abstracts/abstracts/abstracts2011/October/Traore%20et%20al%20(2).htm
(5) 'Low-dose naltrexone targets the opioid growth factor-opioid growth factor receptor pathway to inhibit cell
proliferation: mechanistic evidence from a tissue culture model'
http://ebm.rsmjournals.com/content/236/9/1036
(6) 'Opioid growth factor improves clinical benefit and survival in patients with advanced pancreatic cancer'
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2947031
(7) 'Low Dose Naltrexone: Harnessing the Body's Own Chemistry to Treat Human Ovarian Cancer'
http://www.sciencedaily.com/releases/2011/07/110712143012.htm
(8) 'Low-Dose Naltrexone (LDN): Tricking the Body to Heal Itself'
http://www.sciencedaily.com/releases/2011/09/110902133047.htm
###
Pharmaceutical companies cannot afford to spend millions on clinical trials for out-of-patent drugs, but the solution is
really very simple and could be implemented within 6 months if the govt supported it as proposed.
That is, provide capacity for patients to self-report their health outcomes in structured ways within their own ehealth
records, such that patients self-reported outcomes can become an aspect of evidence, that combined with their other
medical information provides all the evidence needed for efficacy and safety of older drugs, without the need for a
clinical trial.
This is the crux of a recent submission to the current Strategic Review into National Health and Medical Research
(Submission No. 296 - http://mckeonreview.org.au/sub/296_Cris_Kerr_Case_Health.pdf) as well as
previous submissions on Australia's new ehealth
>> Reply
You'll find a collection of 51 LDN detailed case studies, self-reported by patients achieving success, in my free ebook
research publication hosted by the LDN Research Trust in the UK. Included are interviews with 19 health professionals
and all the research/clinicial trial links to 2010.
(1) 'Those Who Suffer Much, Know Much', 5th edition, 2010
http://www.ldnresearchtrustfiles.co.uk/docs/2010.pdf
Another publication that may be of interest is the LDN Research Trust's free ebook containing 201 patient testimonies:
(2) 201 Reasons Why... You Should Know About LDN, 2010
http://www.ldnresearchtrustfiles.co.uk/docs/ebook.pdf
Research & Clinical trials since 2010:
(3) 'Single cohort study of the effect of low dose naltrexone on the evolution of immunological, virological and
clinical state of HIV+ adults in Mali'
http://www.academicjournals.org/JAHR/abstracts/abstracts/abstracts2011/October/Traore%20et%20al%20(1).htm
(4) 'Impact of low dose naltrexone (LDN) on antiretroviral therapy (ART) treated HIV+ adults in Mali: A single blind
randomized clinical trial'
http://www.academicjournals.org/JAHR/abstracts/abstracts/abstracts2011/October/Traore%20et%20al%20(2).htm
(5) 'Low-dose naltrexone targets the opioid growth factor-opioid growth factor receptor pathway to inhibit cell
proliferation: mechanistic evidence from a tissue culture model'
http://ebm.rsmjournals.com/content/236/9/1036
(6) 'Opioid growth factor improves clinical benefit and survival in patients with advanced pancreatic cancer'
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2947031
(7) 'Low Dose Naltrexone: Harnessing the Body's Own Chemistry to Treat Human Ovarian Cancer'
http://www.sciencedaily.com/releases/2011/07/110712143012.htm
(8) 'Low-Dose Naltrexone (LDN): Tricking the Body to Heal Itself'
http://www.sciencedaily.com/releases/2011/09/110902133047.htm
###
Pharmaceutical companies cannot afford to spend millions on clinical trials for out-of-patent drugs, but the solution is
really very simple and could be implemented within 6 months if the govt supported it as proposed.
That is, provide capacity for patients to self-report their health outcomes in structured ways within their own ehealth
records, such that patients self-reported outcomes can become an aspect of evidence, that combined with their other
medical information provides all the evidence needed for efficacy and safety of older drugs, without the need for a
clinical trial.
This is the crux of a recent submission to the current Strategic Review into National Health and Medical Research
(Submission No. 296 - http://mckeonreview.org.au/sub/296_Cris_Kerr_Case_Health.pdf) as well as
previous submissions on Australia's new ehealth
>> Reply
24 Aug 2012 1:59:38pm
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Thank you Catalyst! What an extremely interesting
program. I was diagnosed with MS 19 years ago and spent 11.5 years
injecting myself with interferon (Betaferon) and the last 4 years having
Tysabri infused into me every 4 weeks. I can now see a glimmer of light
at the end of the tunnel, and it doesn't involve a needle- yay!
>> Reply
>> Reply
24 Aug 2012 1:09:05pm
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I always thought(MS) it was an infection. My Mom,
when she had me had Encepholitis, Flabitis, and the Mumps. When I was
born they isolated me for 2 weeks, no breast feeding. And I've had many
many an infection since I was a kid. The sinusitis is the longest
lasting. I've printed the CPN handbook and will ask my doc to read it.
She wasn't that keen on LDN(Low dose Naltraxone) because she has never
prescribed it before. The antibiotics route she is more familiar with.
>> Reply
>> Reply
24 Aug 2012 12:37:24pm
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Regarding MS being associated with infection.
MS is known to be an "inflammatory disease".
Many (if not all diseases) are associated with inflammation.
Therefore, there is a malfunction of the immune system in diseases. This immune disfunction results in the loss of the ability to fight infections.
One test for compromised immunity is the nagalase assay. This assay is not currently done in Australia.
Subsequent to a high nagalase level which indicates compromised immunity, the use of GcMAF is being used to rectify immunity and restore good health.
This is being used overseas to treat an increasing number of diseases, including cancer, AIDS, CFS, lyme and I believe MS.
It is also being used with very impressive results with autism.
I have submitted to the McKeon Health report regarding this.
This issue is so important that it would deserve at least a one hour programme.
The situation with doctors is gereal knowledge.
Sincerely Dr Ivan Hooper.
>> Reply
MS is known to be an "inflammatory disease".
Many (if not all diseases) are associated with inflammation.
Therefore, there is a malfunction of the immune system in diseases. This immune disfunction results in the loss of the ability to fight infections.
One test for compromised immunity is the nagalase assay. This assay is not currently done in Australia.
Subsequent to a high nagalase level which indicates compromised immunity, the use of GcMAF is being used to rectify immunity and restore good health.
This is being used overseas to treat an increasing number of diseases, including cancer, AIDS, CFS, lyme and I believe MS.
It is also being used with very impressive results with autism.
I have submitted to the McKeon Health report regarding this.
This issue is so important that it would deserve at least a one hour programme.
The situation with doctors is gereal knowledge.
Sincerely Dr Ivan Hooper.
>> Reply
25 Aug 2012 5:14:55pm
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I have been on antibiotic therapy for Sarcoidosis
with great results. Everyone wants proof before they will prescribe
these drugs. Thankfully I have a great GP who believes also that may of
these inflammatory diseases are caused by bugs.
>> Reply
>> Reply
24 Aug 2012 12:31:01pm
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Hmmm....interesting...but I was pretty unhappy with this program. It seemed to follow
all the classic alternative medicine arguments. The program suggested there was no
research being done on these hypotheses and the only reason the neurologists are ignoring them
is because pharmaceutical companies cannot make a profit from the treatment. The program only
presented evidence in favour of these 'maverick' ideas and none against.
I thought there must be more to it than that and went online and immediately found this blog post
http://theness.com/neurologicablog/index.php/yet-another-nail-in-the-ccsvi-coffin/
taking about Zamboni's hypothesis. Despite scepticism there is research being done on it but the evidence is stacking up against it.
Surely Catalyst being a science program could have discussed some of the scientific debate and presented some of the counter evidence.
It could have also mentioned that a lot of other cures have been proposed but haven't worked out.
By the way Barry Marshall cured himself with Bismuth and Metronidazole which are generics. He won the
Nobel Prize because his maverick idea and findings were quickly replicated and backed up by lots of solid evidence
that completely overwhelmed the initial resistance and conventional thinking.
>> Reply
all the classic alternative medicine arguments. The program suggested there was no
research being done on these hypotheses and the only reason the neurologists are ignoring them
is because pharmaceutical companies cannot make a profit from the treatment. The program only
presented evidence in favour of these 'maverick' ideas and none against.
I thought there must be more to it than that and went online and immediately found this blog post
http://theness.com/neurologicablog/index.php/yet-another-nail-in-the-ccsvi-coffin/
taking about Zamboni's hypothesis. Despite scepticism there is research being done on it but the evidence is stacking up against it.
Surely Catalyst being a science program could have discussed some of the scientific debate and presented some of the counter evidence.
It could have also mentioned that a lot of other cures have been proposed but haven't worked out.
By the way Barry Marshall cured himself with Bismuth and Metronidazole which are generics. He won the
Nobel Prize because his maverick idea and findings were quickly replicated and backed up by lots of solid evidence
that completely overwhelmed the initial resistance and conventional thinking.
>> Reply
24 Aug 2012 11:07:05pm
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I have read your link and have 2 issues.
1. Using rodents - we have no idea what causes MS, so cannot actually give rodents MS. They can give MS like lesions but NOT MS. therefore any research using this as a basis is flawed. I would guess a mouse vascular system is also very different to human especially the way a jugular vein drains.
2. The report comes from Neurology, the same group who are doing there very best to shut this down. I know for a fact they are lying to their patients. One telling patients that none of their patients have had a good outcome with CCSVI whereas I know of at least two who have had life changing success.
I want research, but balanced and fair.
>> Reply
1. Using rodents - we have no idea what causes MS, so cannot actually give rodents MS. They can give MS like lesions but NOT MS. therefore any research using this as a basis is flawed. I would guess a mouse vascular system is also very different to human especially the way a jugular vein drains.
2. The report comes from Neurology, the same group who are doing there very best to shut this down. I know for a fact they are lying to their patients. One telling patients that none of their patients have had a good outcome with CCSVI whereas I know of at least two who have had life changing success.
I want research, but balanced and fair.
>> Reply
28 Aug 2012 7:42:35am
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Yes George, I agree.
We need population health data that is secure, balanced, has and maintains integrity and raises transparency.
The best way to do that is to design a secure population health research framework and ensure the widest possible range of data is collected and wisely employed in the best interests of us all.
You may or may not be aware that Australia has developed a central electronic health record known as the Personally Controlled eHealth Record (PCEHR).
It will be available to any Australian who opts in.
Doctors will have capacity to upload a medical history to the record and will be able to update the record with each subsequent health event.
Patients who opt in to having a PCEHR will be able to see this data, as will their other treating doctors.
Patients will also be able to add information to their record, eg; allergies, advance care directives, organ donor status.
They will also have capacity to write freestyle diary notes in their own ehealth record.
But there is a problem... and that is that the record was not designed as part of a long term population health record or to support secondary research use.
For a complete patient health profile, you need more than medical tests, diagnoses and prescribing history... you need to record the actual health outcomes they experienced.
The person best-placed to report on actual health outcomes experienced is clearly the patient, the person who is at the centre of all health activity at all times and is intimately familiar with 'what worked' and 'what didn't work' for them.
Historically, patients have been discouraged from self-reporting their health outcomes because if they do, their testimony is denigrated as 'patient anecdote' that has no value as an aspect of scientific evidence.
But patient testimony does have potential scientific value. It's just that no-one has been particularly interested in creating a framework that would release that value.
There is a path forward that would raise the value of patient testimony to that of an aspect of reliable scientific evidence.
Rather than offer only freestyle diary entries (as has been proposed), patients could instead be self-reporting their health outcomes in structured ways (through drop down lists, eg; symptoms, medication side effects, quality of life scales, etc.
Over time, structured feedback from patients on treatments and their short and long-term outcomes would build into a valuable public health research dataset in its own right.
And where health success is being achieved through out-of-patent drugs with good safety profiles, the data captured could validate efficacy and safety and potentially, negate the need for expensive double-blind clinical trials (where pharmaceutical companies have no interest due to lack of pote
>> Reply
We need population health data that is secure, balanced, has and maintains integrity and raises transparency.
The best way to do that is to design a secure population health research framework and ensure the widest possible range of data is collected and wisely employed in the best interests of us all.
You may or may not be aware that Australia has developed a central electronic health record known as the Personally Controlled eHealth Record (PCEHR).
It will be available to any Australian who opts in.
Doctors will have capacity to upload a medical history to the record and will be able to update the record with each subsequent health event.
Patients who opt in to having a PCEHR will be able to see this data, as will their other treating doctors.
Patients will also be able to add information to their record, eg; allergies, advance care directives, organ donor status.
They will also have capacity to write freestyle diary notes in their own ehealth record.
But there is a problem... and that is that the record was not designed as part of a long term population health record or to support secondary research use.
For a complete patient health profile, you need more than medical tests, diagnoses and prescribing history... you need to record the actual health outcomes they experienced.
The person best-placed to report on actual health outcomes experienced is clearly the patient, the person who is at the centre of all health activity at all times and is intimately familiar with 'what worked' and 'what didn't work' for them.
Historically, patients have been discouraged from self-reporting their health outcomes because if they do, their testimony is denigrated as 'patient anecdote' that has no value as an aspect of scientific evidence.
But patient testimony does have potential scientific value. It's just that no-one has been particularly interested in creating a framework that would release that value.
There is a path forward that would raise the value of patient testimony to that of an aspect of reliable scientific evidence.
Rather than offer only freestyle diary entries (as has been proposed), patients could instead be self-reporting their health outcomes in structured ways (through drop down lists, eg; symptoms, medication side effects, quality of life scales, etc.
Over time, structured feedback from patients on treatments and their short and long-term outcomes would build into a valuable public health research dataset in its own right.
And where health success is being achieved through out-of-patent drugs with good safety profiles, the data captured could validate efficacy and safety and potentially, negate the need for expensive double-blind clinical trials (where pharmaceutical companies have no interest due to lack of pote
>> Reply
24 Aug 2012 12:00:59pm
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I found the programme and information very
interesting and positive. I will be discussing this with my Specialist. I
too would like to be cured and time is running out if trials are not
commenced immediately.
>> Reply
>> Reply
24 Aug 2012 12:00:00pm
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l'm so.... glad the way this story was told,well
done. THE real truth is hard to believe for people that don't think
outside the box. It Even fixed her eye sight there needs more work done
in that area!! love it thx one story i'd like you to work on is
chemtrails aerosol Spraying
>> Reply
>> Reply
24 Aug 2012 11:16:20am
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it never ceases to amaze me to learn that the
medical profession can be so arrogant and indifferent to new ideas ...
think outside the box should be the new motto for Australian specialists
in regards to the new stream of viral infections entering our shores
>> Reply
>> Reply
24 Aug 2012 10:53:47am
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My sister has stage two MS and is now a quadrapalegic ,I wonder if there is any hope for her.
I would hope that someone will step up and prove this new therapy, even though Big Pharma won't be able to make hundreds of millions off a new drug. Big Pharma has no interest in curing any disease that won't make them piles of money.
So it will be up to the independents to prove this theory and hopefully make it work. My fear is that the cure will come to late for my sister and that Big Pharma will do everything they can to either squash it or control it either way we all lose.
>> Reply
I would hope that someone will step up and prove this new therapy, even though Big Pharma won't be able to make hundreds of millions off a new drug. Big Pharma has no interest in curing any disease that won't make them piles of money.
So it will be up to the independents to prove this theory and hopefully make it work. My fear is that the cure will come to late for my sister and that Big Pharma will do everything they can to either squash it or control it either way we all lose.
>> Reply
24 Aug 2012 10:12:17am
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I'm an MS patient. Who knows the 3 anti-biotics involved? I will try anything at this point!
>> Reply
>> Reply
Moderator: We can't provide medical advice but
suggest that you consult your treating medical practitioner for further
information and advice.
Many viewers have posted that http://www.cpnhelp.org/ also has helpful information
Many viewers have posted that http://www.cpnhelp.org/ also has helpful information
24 Aug 2012 11:20:49am
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Gday.... I saw one on the antibiotics is
Metronidazole ..,l it's on of the strongest antibiotics known I have had
it 4 times and the sideffects after 2 weeks horrendous ... If you read
the info on it very very dangerous t take fr any period ( max is usually
14 days not a year!! ) Long term can cause lesions in the brain and
cancer. I have MS and I would want to see a hell of a lot more science
before doing this, is far from proof and the so called cure might prove
far worse
>> Reply
>> Reply
24 Aug 2012 12:02:30pm
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The metro is taken five days out of every month. It
is rough. There are some patients that take it everyday and manage just
fine. The higher you're bacterial load, the sicker you're going to be.
An alternate is Tinidiazole. I'm taking it now and its easier on the
system than the metro.
>> Reply
>> Reply
24 Aug 2012 11:51:12am
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Get all metals removed from your body, especially
any type of metal fillings as I have done. Then use chelation to remove
the metals from your brain and blood. Use Chlorella and coriander to do
this. Then you will be cured like I have.
>> Reply
>> Reply
Moderator: The information provided on this
website provides a forum for people to express and exchange their views
on our story. It's intended solely for the general information of the
reader. You should consult your treating medical practitioner for
specific medical advice and treatment.
24 Aug 2012 11:59:20am
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-
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There are more than 3 antibiotics and many possible
combinations you could try depending on your condition. Go to
www.cpnhelp.org
Info on the protocals is there.
>> Reply
Info on the protocals is there.
>> Reply
24 Aug 2012 4:20:40pm
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Hello Nick, you can find the answer in the "ThisisMs" forum: http://www.thisisms.com/forum/
>> Reply
>> Reply
24 Aug 2012 9:48:55am
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Very interesting indeed... But on a very cautious
note.. Till we know exactly what MS how can we be sure we have a cure,
it has been discussed that it is an umbrellas of several conditions with
wildly varying outcome and causes maybe. One critical feature with MS
is remission this can be as long as decades. A great deal of
longitudinal study over a large study group has to take place before a
miraculous blanket cure can be proclaimed, to ensure remission is not
confused with cure or treatment. Being a person with MS myself I would
love nothing better, but coming from a family of medical research
scientists I realize that proving these things consistently is not easy.
You can't "test" to see if you have MS like a virus, only look for
signs of its damage or activity. When I was diagnosed 9 yrs ago the
Neurologists were certain I was headed for quadriplegia, but things have
improved in a miraculous way, seemingly spontaneously. I am uncertain
what is means only time will tell
>> Reply
>> Reply
24 Aug 2012 9:13:50am
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In his book entitled "Trace your Genes to Health"
(1984), Australian Dr Chris Reading states: "Chlamydia pneumonia titre:
This bacteria is associated with pneumonia, recurrent chest infections,
pleurisy, asthma, pericarditis, cardiomyopathy, coronary artery disease,
and is commonly seen also in Multiple Sclerosis". If Dr Reading (I
think he still lives in Sydney)knew this back in the 1980s, why has it
not been researched and why is a doctor from England being credited for
linking the bacteria to MS? Show was great, but there are so many
questions not being answered.
>> Reply
>> Reply
24 Aug 2012 12:04:39pm
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Dr. Stratton in America first found the connection. For more info, go to www.cpnhelp.org
>> Reply
>> Reply
24 Aug 2012 8:50:22am
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i was diagnosed with m s (refuse to put it in
capital letters) in 2007. i am still high functioning but i have noticed
deteriation on my right side as in weak legs and drop foot to my right
foot. i trip over a lot and have fractured my left radius recently. i
will be seeing my neurologist on 3rd of sept. 12 to discuss my last mri
results. your report will be high on my agenda and i can already feel
his response but i will pursue the treatments of thibault,wheldon and
zamboni with hope and an open mind. i think it extreme folly not to try
or to wait years for proof while i deteriate more.
>> Reply
>> Reply
24 Aug 2012 10:46:18am
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I was diagnosed In 2000 &have invented a
legassist for my left leg as I have drop foot &heavyness of leg
after tripping over many times dislocating shoulder . I thought my only
option was wheelchair or leg assist which kept me mobile
&independent Simply it's a Bungay cord belted around my waist
Hooked to my
Left shoe. It has kept me walking &mobile . I really just want people to know there is alt to wheel chair Hope this can be of some hope
>> Reply
Left shoe. It has kept me walking &mobile . I really just want people to know there is alt to wheel chair Hope this can be of some hope
>> Reply
24 Aug 2012 2:55:20pm
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There is an excellent book available with a change in a diagnosed ms person's diet
I'm on the new diet with positive improvement in strength & balance
Book titled "Overcoming Multiple Sclerosis" by Professor George Jelinek published in November 2010
>> Reply
I'm on the new diet with positive improvement in strength & balance
Book titled "Overcoming Multiple Sclerosis" by Professor George Jelinek published in November 2010
>> Reply
24 Aug 2012 2:05:51am
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I want to try this! Is the antibotics available in the US and will they release the info?
>> Reply
>> Reply
Moderator: Thanks for your question. As Dr Paul
Thibault states in the story, the antibiotics that are used have been
around for many, many years and are all off patent.
We can't provide medical advice but suggest that you consult your treating medical practitioner for further information and advice.
We can't provide medical advice but suggest that you consult your treating medical practitioner for further information and advice.
-
-
24 Aug 2012 12:18:38am
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A really interesting programme. There is a
desperate need for doctors to take more notice of these successes. Why
can't governments be more generous in funding research? It should be
mandatory that funds and grants are provided on an annual basis for
research into conditions like MS.
>> Reply
>> Reply
23 Aug 2012 11:50:40pm
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Go Catalyst!! Well done for tackling this
controversial topic. After a year-long battle with the medical system,
I'm currently recovering from Lyme disease, rather than dying slowly and
painfully from 'atypical MS'. Thank you for shedding some light on this
topic!
>> Reply
>> Reply
23 Aug 2012 11:24:32pm
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Drs Wheldon and Thibault may be interested in this publication.
Proal, A.D., Albert, P.J., Blaney, G.P., Lindseth, I.A., Benediktsson, C. and Marshall, T.G. (2011) Immunostimulation in the era of the metagenome. Cellular and Molecular Immunology, 8 (3). pp. 213-225.
Link to Published Version: http://www.nature.com/cmi/journal/v8/n3/full/cmi201077a.html*
Microbes are increasingly being implicated in autoimmune disease. This calls for a re-evaluation of how these chronic inflammatory illnesses are routinely treated. The standard of care for autoimmune disease remains the use of medications that slow the immune response, while treatments aimed at eradicating microbes seek the exact opposite-stimulation of the innate immune response. Immunostimulation is complicated by a cascade of sequelae, including exacerbated inflammation, which occurs in response to microbial death. Over the past 8 years, we have collaborated with American and international clinical professionals to research a model-based treatment for inflammatory disease. This intervention, designed to stimulate the innate immune response, has required a reevaluation of disease progression and amelioration. Paramount is the inherent conflict between palliation and microbicidal efficacy. Increased microbicidal activity was experienced as immunopathology-a temporary worsening of symptoms. Further studies are needed, but they will require careful planning to manage this immunopathology.
>> Reply
Proal, A.D., Albert, P.J., Blaney, G.P., Lindseth, I.A., Benediktsson, C. and Marshall, T.G. (2011) Immunostimulation in the era of the metagenome. Cellular and Molecular Immunology, 8 (3). pp. 213-225.
Link to Published Version: http://www.nature.com/cmi/journal/v8/n3/full/cmi201077a.html*
Microbes are increasingly being implicated in autoimmune disease. This calls for a re-evaluation of how these chronic inflammatory illnesses are routinely treated. The standard of care for autoimmune disease remains the use of medications that slow the immune response, while treatments aimed at eradicating microbes seek the exact opposite-stimulation of the innate immune response. Immunostimulation is complicated by a cascade of sequelae, including exacerbated inflammation, which occurs in response to microbial death. Over the past 8 years, we have collaborated with American and international clinical professionals to research a model-based treatment for inflammatory disease. This intervention, designed to stimulate the innate immune response, has required a reevaluation of disease progression and amelioration. Paramount is the inherent conflict between palliation and microbicidal efficacy. Increased microbicidal activity was experienced as immunopathology-a temporary worsening of symptoms. Further studies are needed, but they will require careful planning to manage this immunopathology.
>> Reply
23 Aug 2012 10:27:46pm
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The real disease here is conventional thinking and
it hasn't just infected medicine. It infects business, education,
government and almost every aspect of our society. Conventional thinking
often kills projects before there can possibly be sufficient evidence
to provide wide acceptance. I support evidence based medicine, policy,
etc. but sometimes we need open minds to recognise when that evidence
should be collected.
>> Reply
>> Reply
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23 Aug 2012 10:12:20pm
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This story raises a vital issue of the need for
transparency in research for MS. Neurologists and researchers who direct
the funding must lay bare their conflicts of interests. Research should
not be skewed to profit-making treatments as this will never derive a
cure only life long customers. So great to see a new paradigm being
considered but adequate, unbiased clinical trials are imperative.
>> Reply
>> Reply
24 Aug 2012 2:13:19pm
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Well put.
I begin treatment on Gilenya tomorrow. I found it disconcerting to be given a Gilenya pamphlet that seemed more like an advertisement with a happy family playing at the beach on the cover.
>> Reply
I begin treatment on Gilenya tomorrow. I found it disconcerting to be given a Gilenya pamphlet that seemed more like an advertisement with a happy family playing at the beach on the cover.
>> Reply
25 Aug 2012 8:51:24pm
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I am on Galinia for 6 month after trying all the
drugs eve label till now I am fed up and I am going to see dr Paul
thibault in New castel on the 14.1 2013
I am hopping to finde some good in this
Amalia weis
>> Reply
I am hopping to finde some good in this
Amalia weis
>> Reply
24 Aug 2012 4:43:42pm
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I have never met the lady but thank you Kerri
Cassidy for your tenacity in pushing for transparency in MS research. I
too face a future living with all the uncertainty that MS brings and
live in eternal hope that a cure is found regardless of who profits by
it. Whilst I passionately welcome the NDIS, I see even more merit in
preventative research! Don't give up on us. Please keep pushing Kerri.
Thank you thank you thank you :-)
>> Reply
>> Reply
23 Aug 2012 9:52:41pm
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That's what happened to me, a neglected recurring
bronchitis with the damp canals of Amsterdam, which led to MS in 1992.
Dismissed by prof. Spira as being "esoteric", when I mentioned it in
2005 at the Sydney POW.
>> Reply
>> Reply
23 Aug 2012 9:47:24pm
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Hi i have MS i've had it since March 2008. I watched
the video & was amazed as 6 months b4 i got Ms i got a very bad flu
i was down for 2 weeks with it i was also travelling at the time, i've
always believed that caused my Ms.
So i this is the cause of MS would love too no more as i too have lost so much cause of my MS thank you. Miss D Brownrigg Australia
>> Reply
So i this is the cause of MS would love too no more as i too have lost so much cause of my MS thank you. Miss D Brownrigg Australia
>> Reply
23 Aug 2012 9:42:31pm
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Thank god for medicos like doctor P T who can listen think and reason
>> Reply
>> Reply
23 Aug 2012 9:31:08pm
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Thanks for the story on MS. I think you have raised
awareness of new research. I think there needs to be greater
investigation to break open the stranglehold that neurology and
pharmaceutical companies have on MS and new research ideas.
>> Reply
>> Reply
23 Aug 2012 9:15:14pm
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Whether it be infection by virus or bacteria, I
heartily welcome this debate. In my day, it was the Orkney Islands
rather than the Faroes, with 1/11 having MS. One theory then was the
residence of American troops. (Along with other theories relating to
scrapie in sheep).
Thank you for your balanced report.
Fiona Hall
(PWMS 31 years)
>> Reply
Thank you for your balanced report.
Fiona Hall
(PWMS 31 years)
>> Reply
23 Aug 2012 8:54:05pm
Not sure why Australia's Professor George Jelinek's research on MS using mind-body, lifestyle protocols was not discussed in this program??
His research was published in March/April this year in the international neurological science journal.
>> Reply
- Not sure why Australia's Professor George Jelinek's research on MS using mind-body, lifestyle protocols was not discussed in this program??
His research was published in March/April this year in the international neurological science journal.
>> Reply
28 Aug 2012 5:57:36pm
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Absolutely..I know first hand of people who are in
total remission from their MS since doing a residential program and
following his regime. This is facilitated by Prof George Jelinek at The
Gawler Foundation in the Yarra Valley in Victoria.
www@gawler.org
Recommended reading "Overcoming MS" by George Jelinek.
>> Reply
www@gawler.org
Recommended reading "Overcoming MS" by George Jelinek.
>> Reply
23 Aug 2012 8:28:21pm
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This just makes so much sense!! Can anyone else see
the pieces all falling into place? I was assessed for the CCSVI and i
have it but am being assessed for a HSCT which may be a more aggressive
way of killing the bacteria with the same effect!
>> Reply
>> Reply
23 Aug 2012 8:27:33pm
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Finally someone willing to listen and think outside the box!!
Interesting that lack of potential profits can keep us in the dark ages. Something seriously wrong with our health system.
>> Reply
Interesting that lack of potential profits can keep us in the dark ages. Something seriously wrong with our health system.
>> Reply
23 Aug 2012 8:18:29pm
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It would be very advantageous for the experts to
also have a look at Dr Terry Wahls and her research and treatment of her
own progressive Multiple Sclerosis. she has gone from being dependent
on a reclining wheelchair to cycling and a very active life.Her website
is www.terrywahls.com/
Dr. Wahls is the lead scientist in a clinical trial testing her protocol in others with progressive MS.
>> Reply
Dr. Wahls is the lead scientist in a clinical trial testing her protocol in others with progressive MS.
>> Reply
23 Aug 2012 8:13:58pm
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Thank you for having the courage to look beyond
conventional thinking. I am a sufferer of Lyme disease which I am unable
to have diagnosed in Tasmania as clinical diagnosis is the way given
the nature of the bacteria. I was struck by the similarities regarding
the behaviour of bacteria and the difficulty in detecting it. Do you
think there are parallels? I have got to the point where I can no longer
work. I am just hoping that there is someone like you who can help Lyme
disease sufferers.
Again, thank you for your courage and tenacity and all the best to your wife and family.
Llewella Harvey
>> Reply
Again, thank you for your courage and tenacity and all the best to your wife and family.
Llewella Harvey
>> Reply
Moderator: Thanks very much for your comments.
Just a reminder not to post any personal information about yourself or
anyone else on this message board (for example telephone numbers, home
addresses, email addresses, MSN or ICQ details).
24 Aug 2012 10:00:01pm
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dear Ella Harvey i have been cured from Lyme disease
by my family doctor with a long treatment of antibiotics (7 years) I
took doxycycline for one year and minocycline for six years (both 200 mg
a day). I've been totally free of symptoms for 8 months now. greetz Pim
Scheelings (Holland)
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Moderator: Please don't post any personal
information about yourself or anyone else on this message board (for
example telephone numbers, home addresses, email addresses, MSN or ICQ
details).
25 Aug 2012 3:42:29pm
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Chlamydia pneumoniae is not only implicated in MS
but in many other chronic illnesses. I fell ill in 2000 and was
diagnosed with fibromyalgia in 2005. I suffered dreadful pain and
cognitive dysfunction. After finding Cpnhelp and undergoing antibiotic
treatment targeting Chlamydia pneumoniae, I am now leading a pain-free
existence.
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>> Reply
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27 Aug 2012 8:44:35am
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This is just another example of people suffering
with chronic pain and debilitating illness know more than their health
care providers.
We have time to do the research but go unheard by conservative medicos who are still stuck in their cookbook medicine treatments.
www.watershedmedicine.com has heaps of information to learn more about this NOT RADICAL treatment. Heaps of people are going from bedbound to future bound using these treatments.
>> Reply
We have time to do the research but go unheard by conservative medicos who are still stuck in their cookbook medicine treatments.
www.watershedmedicine.com has heaps of information to learn more about this NOT RADICAL treatment. Heaps of people are going from bedbound to future bound using these treatments.
>> Reply
27 Aug 2012 9:03:19pm
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Watch this episode on possible connection between
bacteria and MS and Monday night 4 Corners (27th) on the possible
connection between bacteria and Autism. Make your own connections but
it seems we should be looking in this area - anti-biotics, food,
environment all the hard issues. Now maybe there is a connection with
epilepsy and these issues? Please more research into these areas and
less vested interest.
>> Reply
>> Reply
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