http://queenslandlymedisease.weebly.com/little-lymies.html
A Day in the Life of a Little Lymie*
A Day in the Life of a toddler with Lyme Disease would be gut wrenching to most people
Jacqui van Teulingen from New South Wales has had a gutful of health officials …
"We sure as hell don’t watch our kids with cancer suffer and walk away – AND DO NOTHING!!
Maybe a Health rep would like to hold my screaming 3 year old when she has her next blood taken - we are up to about number 36, or perhaps try to console her sobbing for an hour afterwards.
Or maybe they'd like to be around at 3am in the morning comforting her while she is writhing on the floor in agony waiting an hour for the ambulance.
Perhaps they'd just hold her hand when she is limp and hooked up to heart and breathing monitors in ICU on her 15th visit to hospital.
Or if that was all a little too distressing … maybe they'd just hold my hand while I sit outside a hospital theatre for 4 hours waiting for news they'd stopped her haemorrhaging.
Gee, if all that was even too much maybe they'd just like to be with us in the Dr's room - Igenex positive Lyme Results in hand - when they say, ‘no she can't have Lyme disease, we don’t have that here’
I'd give anything for a Politician / Health Official to walk this path with us … I'm damn sure it would not be acceptable if it was them and their child.”
Jacqui van Teulingen from New South Wales has had a gutful of health officials …
"We sure as hell don’t watch our kids with cancer suffer and walk away – AND DO NOTHING!!
Maybe a Health rep would like to hold my screaming 3 year old when she has her next blood taken - we are up to about number 36, or perhaps try to console her sobbing for an hour afterwards.
Or maybe they'd like to be around at 3am in the morning comforting her while she is writhing on the floor in agony waiting an hour for the ambulance.
Perhaps they'd just hold her hand when she is limp and hooked up to heart and breathing monitors in ICU on her 15th visit to hospital.
Or if that was all a little too distressing … maybe they'd just hold my hand while I sit outside a hospital theatre for 4 hours waiting for news they'd stopped her haemorrhaging.
Gee, if all that was even too much maybe they'd just like to be with us in the Dr's room - Igenex positive Lyme Results in hand - when they say, ‘no she can't have Lyme disease, we don’t have that here’
I'd give anything for a Politician / Health Official to walk this path with us … I'm damn sure it would not be acceptable if it was them and their child.”
After Sophie's first visit to Hospital with Tick borne Relapsing Fever ... Age 1
Sophie has been diagnosed through the USA Igenex Labs as Positive for Lyme Disease with Bartonella Co - infection the same as her mother. Sophie has not left Australia
