This article by Jessica Bernstein appeared in Truth-Out, discussing how hundreds of irate Lyme patients recently protested in front of the IDSA headquarters in "a desperate attempt to change IDSA policies that prevent them from receiving care". Patients who come to see me often report that they have been to multiple physicians before receiving a diagnosis, leading to months and/or years of unnecessary health care costs and suffering.
Although this article describes the frustration of many Lyme patients and lists scientific references on persistence of borrelia, it does not include the most recent scientific evidence showing the persistence of Lyme disease in animals and humans, nor does it discuss the multiple borrelia species now being found in ticks that can account for seronegative disease. I also have discovered that tick-borne co-infections are often playing a role in persistent illness, as well as multiple factors on the Lyme-MSIDS map (discussed in my book). We are the midst of a worldwide spreading epidemic, and it is crucial that all parties come to the table immediately (scientists, researchers, clinicians, insurance companies and politicians), in order to find solutions which will lower the burden of health care costs associated with chronic illness, while relieving the suffering of patients with Lyme and associated tick-borne disorders.
http://www.truth-out.org/news/item/24027-irate-lyme-disease-patients-storm-dinner-party-at-idsa-headquarters
Although this article describes the frustration of many Lyme patients and lists scientific references on persistence of borrelia, it does not include the most recent scientific evidence showing the persistence of Lyme disease in animals and humans, nor does it discuss the multiple borrelia species now being found in ticks that can account for seronegative disease. I also have discovered that tick-borne co-infections are often playing a role in persistent illness, as well as multiple factors on the Lyme-MSIDS map (discussed in my book). We are the midst of a worldwide spreading epidemic, and it is crucial that all parties come to the table immediately (scientists, researchers, clinicians, insurance companies and politicians), in order to find solutions which will lower the burden of health care costs associated with chronic illness, while relieving the suffering of patients with Lyme and associated tick-borne disorders.
http://www.truth-out.org/news/item/24027-irate-lyme-disease-patients-storm-dinner-party-at-idsa-headquarters
